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>You might try joining the online support group for the >recessive from of PKD. This affects mainly children so >most members are parents. Keep in mind that thier kids >will probably have faster progressing PKD since it is >the recessive form and your son isn't going to have >every problem that they do. The helpful part is that >if your son has a problem, most likely someone in the >group has already been through it. Hope this is >helpful. > ><a rel=nofollow target=_blank >href="http://health.groups.yahoo.com/group/ARPKD/">http >://health.groups.yahoo.com/group/ARPKD/</a> > > >>Hi, My 4 year old son found out he had adpkd last July >>06 just by falling and bursting a cyst. The doctor >>assured me that i wouldn't see any problems with this >>disease until he was in his 40s its been almost a year >>and i am scared because three months ago the cyst on >>his right kidney where just over 1 cm now the biggest >>one is almost 3 cm and the other one is 2 cm his >>kidney is only 7 cm big and the other one has 4 cyct >>that are about 4 cm all together and that kidney is 8 >>cm big, this week they put him on an ace inhibitor >>for protein in his urine does any one know how long i >>am looking at before he needs further help?
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