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> >>The main think here is to watch his blood pressure >keep it as low as you can, thats key, I have had this >problem since I was 12yrs old ,Im now 56 an still no >problems, this is a very slow proccess which usually >does not cause problems until much later in life, my >mother had it an did not have major problems until she >was 70 yrs old. dont foreget blood pressure KEEP it >LOW. >><a rel=nofollow target=_blank >>href="http://health.groups.yahoo.com/group/ARPKD/">htt >p >>://health.groups.yahoo.com/group/ARPKD/</a> >> >> >>>Hi, My 4 year old son found out he had adpkd last >July >>>06 just by falling and bursting a cyst. The doctor >>>assured me that i wouldn't see any problems with this >>>disease until he was in his 40s its been almost a >year >>>and i am scared because three months ago the cyst on >>>his right kidney where just over 1 cm now the biggest >>>one is almost 3 cm and the other one is 2 cm his >>>kidney is only 7 cm big and the other one has 4 cyct >>>that are about 4 cm all together and that kidney is 8 >>>cm big, this week they put him on an ace inhibitor >>>for protein in his urine does any one know how long i >>>am looking at before he needs further help?
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