Name (optional):

  Expression ^{(Optional mood/title along with your name) Examples: (happy, sad, The Joyful, etc.) help)}

  E-mail address (optional):

* Type your message here:
>Hi Vicki, I haven't heard of anyone having both of the >conditions that you do but that doesn't mean it's not >out there. You might try joining one of the online >groups for PKD so you'll have a bigger pool of people >to ask. Here's a link to some of the PKD lists. > ><a rel=nofollow target=_blank >href="http://www.geocities.com/HotSprings/Spa/3265/onli >st.html">http://www.geocities.com/HotSprings/Spa/3265/o >nlist.html</a> > >>Hi. I'm 46 and was diagnosed last year with both >>ADPKD2 and renal artery stenosis caused by >>fibromuscular dysplasia(FMD). The doctor diagnosed >>FMD because I do not seem to have blocked arteries >>anywhere else and because I'm under 50 and female. >>The only PKD symptom I've had so far is hypertension >>and my family history indicates that I probably won't >>have any problems until much later in life, if at all. >>As for the FMD RAS, I had an angioplasty done on the >>renal artery last year (no stent - don't need one if >>it is FMD). Between that and a 30 lb. weight loss (on >>purpose), my blood pressure meds have been reduced >>slightly. >> >>Having both of these conditions seems to be rare and >>unrelated according to the research I've done on the >>Internet. The only articles I can find are about >>patients in their 70s or 80s who have both, or very >>young children. Does anyone else out there who is >>middle-aged have both diseases? >> >>Also, my great-grandmother died of a stroke at the age >>of 40. She had PKD but was in her 8th month of her >>8th pregnancy. Is it possible that she either had a >>brain aneurysm that caused the stroke or the same form >>of renal artery stenosis that I have (an aneurysm was >>forming just after the narrowing of the artery)? I am >>going to mention it to my kidney doctor next time I >>see him. >> >>I am one of seven children and except for one brother >>who died last year of unrelated causes, I am the only >>one who has been diagnosed with PKD. I am happy about >>this -- I wouldn't want any of my siblings to have it, >>but the only other people in the family who have it >>(my mother and a cousin) don't like talking about it. >>I'm hoping you guys will be willing to talk. >> >>Anyway, thanks for listening! >> >>Vicki
Choose Message Icon: None :-) Happy ;-) Wink :-D Joy :} Smirk <:-} Innocent ☮ Peace >:) Mischief B-) Shades <3 Heart |O Yawn <:P Sick >:-( Angry :~( Sad ? Question *!* Alert Thumbs Up Thumbs Down (!) Idea [Info] Info Oo. Talk [ View Emoticons ]

Notice: Copies of your message may remain on this and other systems on internet. Please be respectful.