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>Hi Janet, >Although I am pretty new to PKD too, I wanted to let >you know that there is a lot of support out there for >your nephew. If he indeed does have PKD there is a >great message board where lots of very knowledgeable >folks who have been affected by PKD will offer support >and try to answer your questions. The website is: > ><a rel=nofollow target=_blank >href="http://groups.msn.com/PolycysticKidneydiseasechat >community/general.msnw">http://groups.msn.com/Polycysti >cKidneydiseasechatcommunity/general.msnw</a> > >I am pretty new to this whole PKD thing too. Your >nephew needs to be sure that he is dealing with PKD >and not something more severe. It sounds like his >doctor is not the most knowledgeable or compassionate >person around. Maybe he can get his records and go to >a nephrologist who specializes in PKD. Where does he >live? I will be keeping your family in my prayers.
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