Name (optional):

  Expression ^{(Optional mood/title along with your name) Examples: (happy, sad, The Joyful, etc.) help)}

  E-mail address (optional):

* Type your message here:
>Hello Vicki- >I am glad to see that there is someone out there who >wants to talk about this as well. I will soon be 23 >and was dignosed with PKD 5 1/2 yrs ago. My >grandmother had the disease and I think that one of my >aunts has it as well-other than my father who is >undiagnosed mainly because does not want to know, but >from what I understand, the ADPKD does not skip >generations-which means that even though he only had a >50% chance of having it, being that I have PKD >automatically means that my father (the carrier) has >it as well. But I am the only one of the 10 >grandchildren to be diagnosed with it. I feel the same >as you by not wishing this on anybody else-especially >my family, but it would be nice to have someone else >to talk with about it who understands and is right in >the same boat as you. I cannot talk to my grandmother >about it being she passed away 3 yrs ago and while she >was still around, Alzheimer's had already set in and I >just wasn't quite willing to speak so openly of it and >admit that I was so young with a possible (what seemed >at the time) a death sentence. What I mean by that is >how many 17 yr old seniors in high school already have >a good medically based idea on what will potentially >be the cause of their own fatality. I was that person. >I have now become pretty well informed (by my own >doings and my mother's <a rel=nofollow target=_blank >nusrse>, who searched out info on this when I was >first diagnosed) >I am very blessed to have family and friends and a >boyfriend who try and understand and accept me for me >and not for the disease I have. One of my largest >fears is that I will either not be able to have >children when the time is right or even worse that I >will pass this on to them. But I just have to keep >telling myself that what is meant to be will find a >way to happen in the end. >If you want to continue talking, feel free to email me >at samiam.always@hotmail.com >Thanks for listening to you as well. >Samantha
Choose Message Icon: None :-) Happy ;-) Wink :-D Joy :} Smirk <:-} Innocent ☮ Peace >:) Mischief B-) Shades <3 Heart |O Yawn <:P Sick >:-( Angry :~( Sad ? Question *!* Alert Thumbs Up Thumbs Down (!) Idea [Info] Info Oo. Talk [ View Emoticons ]

Notice: Copies of your message may remain on this and other systems on internet. Please be respectful.