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>>Hi Janet, >>Although I am pretty new to PKD too, I wanted to let >>you know that there is a lot of support out there for >>your nephew. If he indeed does have PKD there is a >>great message board where lots of very knowledgeable >>folks who have been affected by PKD will offer support >>and try to answer your questions. The website is: >> >><a rel=nofollow target=_blank >>href="http://groups.msn.com/PolycysticKidneydiseasecha >t >>community/general.msnw">http://groups.msn.com/Polycyst >i >>cKidneydiseasechatcommunity/general.msnw</a> >> >>I am pretty new to this whole PKD thing too. Your >>nephew needs to be sure that he is dealing with PKD >>and not something more severe. It sounds like his >>doctor is not the most knowledgeable or compassionate >>person around. Maybe he can get his records and go to >>a nephrologist who specializes in PKD. Where does he >>live? I will be keeping your family in my prayers.
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