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>>Hi Janet, >The best thing your nephew can do is live a good, >healthy life (just like we all should). Eat a >healthy, low sodium diet, drink lots of water, >exercise, don't smoke, limit alcohol consumption, >limit caffeine consumption, stay away from ibuprofen, >anti-inflammatories, etc. The safest pain med is >tylenol, so try to avoid anything else. > >There is really no way of predicting how many years a >person can live with PKD before they experience >problems. Some people live their whole life and never >have problems from it. (It is sometimes noted on an >autopsy report on an older person who never knew they >had it!). Then of course, there are people who aren't >as lucky and wind up in kidney failure. There is no >way of predicting if and when this will happen. But, >your niece and nephew have to be optimistic...medicine >is improving every day. There may soon be a >medication available to slow/stop the progress of this >disease. And, as horrible as kidney failure may seem, >thankfully, there are kidney transplants (or dialysis) >which help the patient to live a great quality life. >No one can predict what tomorrow will bring for any of >us. The best advice I can give is to live each day, >and try not to worry about the future, because >honestly, there may not ever be anything for your >niece/nephew to worry about. It would be sad to have >wasted so much time worrying for nothing. Good luck >to you and your family.
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