Name (optional):

  Expression ^{(Optional mood/title along with your name) Examples: (happy, sad, The Joyful, etc.) help)}

  E-mail address (optional):

* Type your message here:
>>Hi all, >>My 24 yr old nephew probably has PKD. I say probably, >>and this is the reason for the posting here, is that >>he is under the care of the U.S. Veterans Hospital >>health-care system. >> >>When he was 16, his family doctor found cysts on 1 of >>his kidneys and was told to get checked every year. >>Well, he didn't. A month ago he went in with a >>hernia, had an ultra-sound, and masses were found on >>both kidneys. They ordered a CAT scan and his regular >>doctor wasn't confident enough to make the diagnosis, >>so he was sent to the kidney specialist. Today he had >>his appt, and the specialist said he most likely has >>the disease, but threw in that it could be cancer as >>well. And then they told him to come back in a year. > >>My question is this: >>Are all doctors this nonchalant about this disease? >>Is this the kind of disease that doctors don't worry >>about until it's in the end stages? >> >>My niece is beside herself with worry. I told her to >>call that doctor back and demand a diagnosis. They >>had asked about genetic testing and were told the US >>govt does'nt do that and would have to pay >>out-of-pocket for it at Stanford. (that must cost a >>billion dollars!) >> >>I just e mailed my niece and nephew this group's >>website, along with about 5 others. I made my neice >>promise me she would contact a group, to help with >>questions and concerns. Until she or he does, >>however, I hope it's OK if I try to find out info to >>pass along. >> >>Has anyone here been treated this way by Veterans >>Doctors? Is this normal? Any suggestions on how to >>get a proper dianosis? >> >>Thank you very much, >>Janet > >The DR may be waiting to put the diagnosis on his >medical records. Everything changes once it's there, >insurance often becomes a fond memory, even >employability is affected. If you know he has PKD, >learn about the disease and the steps he should take >to avoid further damaging his kidneys and follow them, >but at his age there is no reason to get the ball >rolling yet, once it starts, you can't stop it.
Choose Message Icon: None :-) Happy ;-) Wink :-D Joy :} Smirk <:-} Innocent ☮ Peace >:) Mischief B-) Shades <3 Heart |O Yawn <:P Sick >:-( Angry :~( Sad ? Question *!* Alert Thumbs Up Thumbs Down (!) Idea [Info] Info Oo. Talk [ View Emoticons ]

Notice: Copies of your message may remain on this and other systems on internet. Please be respectful.