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Subject: Re: New PKD Resource


Author:
Beth
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Date Posted: 23:18:36 02/09/08 Sat
In reply to: Sheila 's message, "Re: New PKD Resource" on 16:23:04 02/07/08 Thu

When you had the cyst drained, was anything injected to get them to scar over so they won't refill? I've never had this done so I apologize if I'm not getting this 100% right but I remember Barb, who was the head of the NJ PKD chapter saying on one of the online groups that injecting a little alcohol or antibiotic into a cyst before draining would cause scarring and keep the cyst from refilling. Maybe you could ask your doctor to look into this for you.
I've read mixed reviews on deroofing but it's been a while since I've seen someone post about it here on the board or at the online group I'm a member of. It seemed to help a few and not do much for others. You might one to join one of the groups and ask there. Good luck to you!

http://www.geocities.com/HotSprings/Spa/3265/onlist.html


>Hi
>I have 3rd stage PKD and am considering deroofing to
>eliminate the pain. Do you know if deroofing shrinks
>the kidney, thus getting relief from pain. I have
>maybe 5/8 cyst that are large enough to remove but the
>pain is horrible. I've had the CT Guided Drainage
>done a number of times, that last approx. two weeks
>and the pain is back. My doc has suggested pain meds
>and muscle relaxers 3 times a day. I think it would be
>tough to function taking all that med. Any info will
>be greatly appreciated.
>Thanks
>Sheila

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Replies:
Subject Author Date
Re: New PKD ResourceNo name10:34:11 02/10/08 Sun


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