Re: total exhaustion and all over body aches -- Polycystic Kidney Disease Message Board

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Subject: Re: total exhaustion and all over body aches

Author:
Bobbie (depressed, over whelmed by pain and at witts end)
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Date Posted: 19:46:14 02/17/08 Sun
In reply to: 's message, "total exhaustion and all over body aches" on 12:20:16 06/01/07 Fri

>I totally know what your going thru... I have had PKD for 23 years now and if thats not enough I also have fibromyalgia. The pain, between the two illnesses is beyond explaination. I take tons of medicine to "try" to keep by b/p under control and I also take some of the strongest pain meds available. I have not been able to work for 6 years now and my quality of life has decreased so much. The few things I may be able to help you with is 1. the pain is constant and I am NEVER pain free (sorry) also my pain is worse in my legs, hip, and back. Please understand that alot of my pain is contributed to the fibromyalgia. 2. I also have severe headaches. My husband is a good man but must work 7 days a week to help with my expenses, which makes me feel guilty, resulting in more depression. To top off my series of problems, 3 days ago I found out I am in stage 3 of my PKD and I now must be put on a donor list for a new kidney. I am very lonely, tired, but can't sleep and getting more depressed with every passing day. The only thing that keeps me going is my husband, children, and granddaughter. I also have a brother I adore. Because of my love for my family and a few close friends I will not show my feelings too much as I don't want them to be any more scared then they are. So, pls keep your chin up and know that everything your going through is normal. If you would like to talk anytime, e-mail me and I'll be there. Believe me I am as frightened as I have ever been, but my stubburness to be volnerable will work in my favor, I hope. I will keep you in my thoughts and remember your not alone. Look forward to hearing from you.
Sincerely,
Bobbie

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>>I totally know what your going thru... I have had PKD >for 23 years now and if thats not enough I also have >fibromyalgia. The pain, between the two illnesses is >beyond explaination. I take tons of medicine to "try" >to keep by b/p under control and I also take some of >the strongest pain meds available. I have not been >able to work for 6 years now and my quality of life >has decreased so much. The few things I may be able >to help you with is 1. the pain is constant and I am >NEVER pain free (sorry) also my pain is worse in my >legs, hip, and back. Please understand that alot of my >pain is contributed to the fibromyalgia. 2. I also >have severe headaches. My husband is a good man but >must work 7 days a week to help with my expenses, >which makes me feel guilty, resulting in more >depression. To top off my series of problems, 3 days >ago I found out I am in stage 3 of my PKD and I now >must be put on a donor list for a new kidney. I am >very lonely, tired, but can't sleep and getting more >depressed with every passing day. The only thing that >keeps me going is my husband, children, and >granddaughter. I also have a brother I adore. >Because of my love for my family and a few close >friends I will not show my feelings too much as I >don't want them to be any more scared then they are. >So, pls keep your chin up and know that everything >your going through is normal. If you would like to >talk anytime, e-mail me and I'll be there. Believe me >I am as frightened as I have ever been, but my >stubburness to be volnerable will work in my favor, I >hope. I will keep you in my thoughts and remember >your not alone. Look forward to hearing from you. >Sincerely, >Bobbie
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