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Subject: Re: My newborn son has pkd


Author:
Beth
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Date Posted: 21:26:44 04/08/08 Tue
In reply to: Fred Lohr 's message, "My newborn son has pkd" on 17:58:40 04/07/08 Mon

I feel for you. It's scary dealing with kidney disease as an adult. It must be so much harder for it to be your child. I wanted to let you know there's a support group for the recessive form or mainly childhood of PKD. I think you'd find people there you could relate to. Wishing the best for you and your son!

http://health.groups.yahoo.com/group/ARPKD/


>Im looking for people who have passed trough similar
>situations that i can talk to. My son was born with
>pkd, 6 weeks old now. I think they are about to take
>out his kidneys and put him on dialasys. If anyone is
>out there that has passed through this, please,
>respond.
>
>Fred/

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