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Date Posted:19:15:47 06/20/08 Fri In reply to:
Marsha
's message, "Lost" on 16:20:25 03/22/08 Sat
Hello. I was just diagnosed on 6/20. I am 43, and I am feeling the same way. It feels like someone has just told me approximately when and how I will pass away - sometime between 60 and 70 my kindeys will fail and I will need a transplant or dialysis. My father, who is now 76, has had triple bypass heart surgery, hight cholesterol, high blood pressure, diabetes, prostate cancer, and a rare type of gastrointestinal cancer tumor - and yet he is still alive and kicking - and this PKD seems like there's not much hope, and I've just been spending time researching articles of possible new developments and therapies I hope some might be ready soon. I wish I had others to communicate with about all this. Anyone, feel free to e-mail if you want someone to talk to.
Thanks
>I just found out Friday, 03/21 that I have several
>cysts on both kidneys. My doctor believes it is ADPKD,
>and I will be having a sonogram on Monday to see if
>there are cysts on any of my other organs. I am too
>young for this! I have no idea what this means for me!
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