| Subject: Re: Chances of PKD? |
Author:
jim
|
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Date Posted: 14:35:25 06/13/06 Tue
In reply to:
Gabe
's message, "Chances of PKD?" on 13:21:43 05/08/06 Mon
please read this, PKD doesnt always end up bad.my grandmother lived to be 75 but it wasnt pkd that killed her and my dad 74 and it wasnt his pkd that killed him. pkd will cause stones many times and infections and weakness. i was diagnosed at 40 and im 54 now . when i found i had it basically i ignored it and didnt worry cause it hadnt killed my dad, many ppl never know they have it. i wished i had been more prepared knowing the symptoms etc then i maybe would have taken better care with diet etc.as far as a nephrologist i went once, i hate the idea of dialysis but i may do it , now im doing ok , i eat the wrong foods but im not over weight , my BP is high and i hurt a lot but have been for 9 yrs. the first time inmy life that a abnormal kidney reading came back from my blood test was in 2005 and my primary over reacted i feel.i had high BP long before my cysts were there. i still can remember when they told my dad he had them , i got depressed and called drs and finally they told me it might never effect him, well it did but he lived a long long full life. one thing im not sure of is this, what about excercise , i know to much jumping around can burst a cyst , i know that the straps they tighten around your waist to give traction therapy caused me to have infections. i had to learn this on my own. please read and read some more , knowing the good and the bad is best.most people live a long time with this. there are more and more things that help certain people. i went to the doctor many yrs and would be ignored about my pain. i had to finally diagnose it myself. i was right. drs arent always .good luck. all will be fine.bye
>My husband's in his late twenties, and during a
>routine physical exam, it was discovered that he had
>elevated blood pressure. As a follow-up, they had him
>come back in for some blood/urine work.
>
>The urine test came back positive for protein, and
>they immediately brought up PKD. For background, his
>younger sister was born with ARPKD, and passed away
>shortly after being born; he has also mentioned that
>two members of his family have suffered from renal
>failure, though he doesn't know if it was PKD.
>
>Based on the basic research I've been able to do
>online, it seems as though his symptoms would fit PKD.
> I don't know if the presence of the autosomal
>recessive variety in his family would affect him at
>all. The ultrasound isn't for a few days. The
>research I've been able to do looks kind of
>discouraging. . .how likely is it that he has PKD?
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