Subject:  Re: combined liver & kidney transplant anyone? |
Author:
Lori
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Date Posted: 09:57:29 03/23/06 Thu
In reply to:
Sheryl
's message, "combined liver & kidney transplant anyone?" on 14:19:21 03/19/06 Sun
>Have polycystic kidney disease and polycystic liver
>disease.
>I am 43 years old and am now on the waiting list for
>this multi-organ transplant. Feeling quite overwhelmed
>with this prognosis and hope to talk to someone who
>has been through this. Apparently there is a very good
>prognosis for those having liver transplants due to
>polycystic disease as compared to other liver
>diseases. Never thought that this would be in the
>cards although I anticipated the eventual need for a
>kidney transplant. Thanks for your help!
>Sheryl Sheryl, I found out I had PKD when I was 17, been on blood pressure medicine since then, didn't have any trouble antil 1998 when I noticed cysts growing in my upper abdomen. Turned out I have polycystic organ disease,inherited from my father. I started having pain, fatigue, sluggishness in 2005, now in March of 2006 I am getting ready for surgery. The doctors at Mayo are removing 60 % of my liver and deroofng the remaining liver. During pre surgery tests they discovered a brain aneursym that they will take care of after liver surgery, they are hoping my kidneys will hold out 6 months to two years. My husband is my donor, a complete match! There are great doctors out there but you have to got to them! My regular doctor didn't want me to see a specialist, I did and am so glad. There's always hope, you just have to look for it. Good Luck
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