Subject:  Re: Just Another College Student |
Author:
Aimee
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Date Posted: 16:45:13 03/09/05 Wed
In reply to:
Beth
's message, "Just Another College Student" on 17:59:45 03/05/05 Sat
>I just want to say that it is nice to know that there
>are other people out there that are dealing with the
>same things that I am. I am 19 and was diagnosed a
>year ago with PKD. Both of my siblings and my mother
>have the disease. I have watched my mother go through
>so much and she is my inspiration to keep going with
>this disease no matter what. She always told me that
>if she never gave up, then her girls would see the
>courage she had to deal with the disease and that
>courage would continue on with us if we should have
>the same situation. My oldest sister has twin two
>year olds and found out she had the disease when they
>were only 7 months old. My other sister is
>handicapped and mentally retarded with the disease.
>This is always a concern of mine due to the fact that
>should she need a transplant, she would more than
>likely never recieve one because her position is not
>seen as beneficail to society. My father has watched
>my mother go through what she has knowing that he
>could have donated a kidney to her, but he is saving
>his incase any of his daughters should need one. My
>mother had a transplant 12 years ago and it has
>finally decided to fail. She is on dialysis now and
>also on the transplant list. We are hopefull, but I
>am frightened. I was 8 when she had the last one and
>I really didn't understand what was going on. Now I
>just wish I was that innocent 8 year old again.
>Having this disease has changed my life. It makes me
>cherish everyday that I have with the people around
>me. I am currently a junior in college and just like
>every other college kid on campus. I always tell
>people that start to feel bad for me when they find
>out I have this disease, that I would rather have this
>disease, then be told I have cancer. I have one of
>the best doctors and I trust him. He gives me hope
>that I will have a great future and live a long life.
>He is always telling me not to be afraid of having
>children someday, because there might be a cure by
>then. I told myself a long time ago that if I found
>out that I had this disease before I had children I
>would chose not to have any of my own. I would not
>want to put this disease into another family, I want
>it to stop with me. Bottom line I have hope and I
>keep going everyday and I hope that by running across
>this one night and not meaning to, that I can give at
>least one person a little bit more hope or reason to
>not give up or give in to this disease.
I tell people, "I have this disease. It does NOT have me."
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