| Subject: Re: aneuryms |
Author:
beth
|
[
Next Thread |
Previous Thread |
Next Message |
Previous Message
]
Date Posted: 04:39:02 03/13/05 Sun
In reply to:
's message, "aneuryms" on 10:29:58 03/07/05 Mon
I'd bring up the fact that you have a family history of anuerysms related to PKD so it would be in the doctor's (to prevent lawsuits if something does happen) and your best interest to have a scan done.
The PKD Foundation's website says "People with ADPKD have about a 5 percent to 10 percent risk of developing intracranial aneurysms. These aneurysms seem to cluster in certain families. That is, if a member of your family has an aneurysm or has ruptured an aneurysm, you may be at a higher risk of having an aneurysm also. People who have ADPKD and a family history of aneurysm should be tested. An aneurysm is an outpouching in a blood vessel. Intracranial aneurysms occur in the blood vessels of the brain. Aneurysms can leak or rupture. In these events the symptoms can include sudden severe headache, pain in moving the neck, nausea and vomiting, and even loss of consciousness. All such symptoms require immediate medical attention."
It's under "What are complications of PKD?" near the bottom of the page at http://www.pkdcure.org/aboutPkd1.htm
If you print it out that should give you some proof from a reputable source that an MRI or MRA is not out of line.
If that doesn't get you anywhere, you can contact your state's medical board and insurance board to lodge a complaint. Making a fuss until you get somewhere! Good luck!
>I am 33 years old and i have been suffering from
>migraines for many years. about 7 years ago my doctor
>sent me for a s-scan and they couldnt determine if
>there was anything in my head because I couldnt use
>the iodine that is used during the process of scanning
>because I am allergic to it.
>Meanwhile, I have been seen by a few doctors who seem
>to be hesitant to send me for a c-scan and seem to
>want to conclude that I suffer from migraines and
>nothing more. How can I "demand" that a c-scan or
>preferably an MRI be performed on me, as they have to
>be authorized by a doctor in order for my insurance to
>pay for it. My migraines are out of control. I have
>hot sensations through out my head sometimes and I
>feel faint. My head is very sensative to the touch
>and I can only use one certain pillow to lay on,
>because everything else is uncomfortable. The pain is
>still there even after I take Tylenol or Advil. I
>want the doctor to understand that this is my life and
>I want an MRI performed and not to be labeled with
>Migraines. THis is a very sensitive issue for me. I
>do not want to die from an aneuryms because I have 4
>children who depend on me. This is why I want to know
>for sure that these are just migraines. I have had 2
>family members (aunt and cousin) who have died from
>aneuryms. I'd like to hear from someone out there who
>understands my situation and can advise me. thanks a
>million..
[
Next Thread |
Previous Thread |
Next Message |
Previous Message
]
| |
