| Subject: Re: Symptoms of Polycystic Kidney Disease |
Author:
Penny
|
[
Next Thread |
Previous Thread |
Next Message |
Previous Message
]
Date Posted: 12:56:31 02/04/04 Wed
In reply to:
Marie McMillan
's message, "Symptoms of Polycystic Kidney Disease" on 10:53:45 01/19/04 Mon
>Hi, my name is Marie and I was diagnosed with PKD when
>I was 18. I didn't have any symptoms until I was 21
>when I had been having headaches for a while and when
>my blood pressure was checked it was high. I was put
>on medication and led a normal life. I continued to
>have headaches but nothing major. As the years wen on
>my blood pressure increased and so did the medication.
> After I had my third child when I was 29 my blood
>pressure would not come down so the medication was
>increased yet again. I am now on atennelol 100mg
>daily, amplodopine 10mg daily and captopril 100mg
>daily.
>
>I am now 33 and have been having constant headaches, I
>suffer from chronic fatigue and I am continually
>having back pain. I take 8 x 500mg tramadol for the
>pain.
>
>My doctors have told me that my kidney function is
>normal and that my blood pressure is well controlled
>with medication and more or less have told me that I
>should not have these symptoms and that I must be
>depressed. I have explained that I was not depressed
>as I have 3 young children that I want to do things
>with and I want to get up in the morning. I feel
>slightly depressed now as the doctor doesn't listen to
>me and my life has totally changed, I have been unable
>to go to my work for the past 20 months. I have had
>to apply for ill health retirement but the criteria is
>very strict.
>
>I am looking for anyone out there who might be able to
>help me. I need people with the same symptoms as
>myself to write to me in order that I can take this to
>my specialist. I should also note that my father and
>grandfather both died from the disease aged 38 years.
>I was very young but my mum has told me that my father
>suffered from chronic fatigue but they were unaware
>that he had PKD. When I was at my work, I would come
>home in a different pair of shoes as my feet and legs
>would be so badly swollen. I have said to the
>specialist how can these symptoms be in my mind.
>
>Anyway if there is anyone out there who can help me I
>would greatly appreciate it.
Hello,I too have polycystic disease and have the same symptoms. Sometimes it is all I can do to get up in the mornings and sometimes sleep for 14 to 16 hrs at a time due to not having any energy. I have begin to notice major changes in the last 2 years. This too is when my kidney function started failing. I now only have 25% total kindey function. I have 2 children of my own, 13 and 10 and keep another child that was taken from her mother and father that is 5. I work 37.5 hours a week and a wife. I hurt so bad sometimes I have to just sit and cry and there is nothing they can do. I do not take pain pills any longer on a regular basis due to I have learnt to deal with the pain as much as possible. When I would take pain meds it did help but then when it wore off I would hurt even worse. the Dr.s tell me my kidneys are the size of footballs and I have gained over 30 lbs in a year. They can say what they want but they do not have this disease. You can hardly function and sometimes your mind does not work right also. I think this may be due to all the toxins your body is holding in due to your kineys not functioning right. I too would love to be able to do more with my children but my health will not allow me to do so. If it were not for my husband and my family, I really do not know how I would make it. I too think anyone with this disease would have some type of depression if they know what lies ahead of them, as I do, cause my mother was on dialysis for 2 years and received a transplant 3 years ago and has suffered miserably but is now doing better. My grandfather died of this after receiving a transplant. My greates fear is dialysis this I don't know if I can do..But will cross that bridge when my time comes. I wish you the best and wether the Dr. believes you or not I do, because I know.
[
Next Thread |
Previous Thread |
Next Message |
Previous Message
]
| |
