| Subject: Re: Need some hope |
Author:
Beth
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Date Posted: 17:07:22 06/22/04 Tue
In reply to:
Karen
's message, "Need some hope" on 11:38:58 06/20/04 Sun
There's an online support group for ARPKD that would give you a chance to talk to others who have been in your shoes. Hope this helps!
http://health.groups.yahoo.com/group/ARPKD/
>HI. My 6 month old son was diagnosed yesterday with
>ARPKD. He is in the hospital now and we don't have
>too much information yet as to what the next step will
>be. His blood pressure is extremely high so he is on
>IV meds and oral meds currently to control it. Our
>world has been turned upside down with this news and I
>would just like to know if anyone could offer us a
>little hope? Thank you.
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