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>>Dear dear LG, i'm sooooo glad for you...and sooo >>envious of those who will get to be there during your >>presentation. >> >>Are the conference organizers (or your support worker, >>or anyone) going to videotape your speech? >> >>You know, many presenters sell videos of their >>presentations and speeches, via Internet for >>example...could you do the same? Would be of great >>benefit for those living beyond Canada...and for your >>family's financial situation, too. What do you think? >> >>Best of luck with your presentation. Will you tell us >>how it went? > > >Hi scap, > >was nervours last night. >something didn't go according to plan. >something happened. > >cathy, was supposed to send one of her co-workers to >bring the rest of lg's speech. >see, dont have a printer, and so had to email the >speech (in sections, as completed each section... it >is divided up into sections... some of which were >titled "indirect contact", "sensory seeking" (titled >them after photos that put up on the overhead... and >for example, when wanted to talk about sensory issues, >and sensitivites in general -such as sensitivities to >meds. that have etc. put up photos that would be good >triggers for mine mind to stay on topic.. so the >'sensory seeking' was a photo of son, at age 20 >months, doing headstands ). > >anyways... the sectinos were emailed, and then >yesterday was supposed to be the last three sections >(had 7 sections all together... it is lots of talking >you need to do... to fill up a whole hour of a >speech)..... >her coworker was supposed to bring it yesterday. > >they had a chance of plans. >it turns out the decided that he would pick up lg in >the am (he was coming at 5:30AM) and so therefore he >was going to bring the final sections then. > >panic set in. >hadnt the final 3 sectinos,and didnt have any of the >photos on the overhead... to view... before today. > >and NEEDED them. > >hadnt yet decided which sections will go in what >order... knew the intro, and conclusion sectins... but >the stuff in the middle.. .didnt decide which order to >put them in... >WAS planning on putting them together AT HOME last >night.. >when could see the sections.. in front of the eyes... >because have a hard time doing this on teh computer. >(this is why printed it out, in sections. >each section was stapled together as if it was one >little speech). > >so, was up until 1 AM worrying about it. >it felt like didnt even want to do the speech. >had prior to this, arranged, and cleaned the nice >clothes that wore to the funeral, because wante dto be >"presentable". instead of the large winter felt packs, >the sweat out fits or shorts that always wear... lol >didnt even want to take those clothing... >didnt even want to have a shower... >felt like it was just all uselesss... >felt like had lost all interest in the whole event, >and the whole speech... >once that one thing happened... >that the speech parts weren't here last night. > >but, got up at 4AM... did have a shower. >decided that will do this for the honour of mine >brother... >if nothing else... >decided that now that have found mine voice... >a voice which he never had... >and never could speak out for himself... >to protect himeself, or to ask for help.... >and realized there will be others like him... still >today... >and so then felt like could get up. >and shower. >did it. > >we drove the fast. >support worker said, dont tell anyone what time we >got there. >;) > >we got there about 1 hour prior to the speech. >which was perfect for lg. >by then was able to check out this special disppaly >for a snoozelon room... >and stimmed out on all the stuff they had set up. > >put on the ear phones... and listened to mine music of >mozart plaing mooonlight sonata... >to calm. >cathy set up teh area.... where spoke. >she checked out thelights.. >couldnt turn off all the lights, ebcause the audience >would be in teh dark. >realized, that someday, need to get perscription >sunglasses if am goign to do this again more then once. >because cant function without the glasses very well... >but also, cant tolerate the lights they had there. >which is how all thelights are usually in those kinds >of facilities. > >was able to fix up the speech. >in order tha twanted ot... after being in that >snoozelon room dispplay. > >wow, they had these fibre optic lights that would LOVe >to have... but they cost $1500 ! >too bad, >could really use them. > >anyways... >the person who came to ask what would like her to >ssay, to introduce lg. >didnt know. >asked cathy what should sy. >asked her "what are the choices A B C ?" >she said she had no choices. >got cathy to help wiht the intro. >she just did a plain intro. >who am, that am on spectrum, with two spectrum kids, >and am single parent.. .and where am from. >taht was enough. > >paced around listening to mozart while they got more >chairs. >the audience was full and there were people standing >along the walls. >so time spent on getting more chairs. > >then more people came. >and more. >people were standing at the doorway. > >the intro started anyways. >took off the headphones, and put up the first photo. >it was the one titled "autistic vision" (it is on >andrew's website if you wana see it). > >started the speech. >liked the fact that coudl pace throughout the front of >the section where spoke. >could pace and carry the speech and talk. >it worked good like that. > >spoke lots, a whole hour was filled. >did all the over heads in correct order (had printed >up 6 photos in a copy centre [imagine, the copy centre >charged $20 ! to print up 6 photos on overhead sheets! >GEESH!.. ooh well, it was in investment well worth >it.. .lol) > > >so, also, what had said at the beginnig. and this is >some good suggestions form another list that am on... > a list where adults on spectrum teach professionals >more about us.... > >anywasy.. there got suggestions about what to do with >question period. >was worried about it... >because couldnt anticipate all the types of questions >and what they might be about. >tried the best that could.. >to imagine what they might ask about. > >anyways... this is what did about the questions. >told the people, taht they could write their questions >down on paper.. and their email address also. >then, if there were questions that couldnt answer at >that time.. so quickly.. could then email them an >answer.. >OR if they chose to ask in person.. they might get lg >to answer "pass" which meant that couldnt answer then, >but they could ask in email. > >so this worked. >when was done./ >they all stood and clapped. >it was wierd. >because didnt sing, or dance... or make a performance. >so who knows what they were up to. > >then the questions started. >it was an easy set of questions ... >re: ABA/IBI, dietary interventions, educational >issues, and "what helped you" to connect with the >world outside of mineself... that kind of stuff. >very basic. >there were only two difficult questions. >1) do you have an help from your family? >2) do you have any siblings. >that was DIFFICULT. >ALMOST said "pass".. BUT didnt rememebr to... >(now know, that the 'pass' thing wont work, when am >faced with a question that DO KNOW the answer to right >now.. questions that CAn reply to, wihtout thinking >about them.. ) >anywayas... >told them, that HAD a twin brother who passed away at >age 6 "from an injury" (well, guess getting your head >bashed in by your family members for being such a >"retard" IS an "injury" .. is it not?) >also told them that had one sister who is 20 yrs >younger and one who is 10 yrs younger. > >then, after the "formal" question period... >the people started rushing. >realized that the walls were again full of people. >these people all had stood there for an hour and a >half. >the doorway was full of poeple who started rushing in. >thought that was late in getting out of the room... >for the next presentation. >well, wasnt. >they had stood out in the hallway... >listening. >they ALL came in at that time then... >a herd of them! ACK! > >well, several people started asking "do you provide a >transcript of your speech?".... the 7th person who >asked for the transcript was a man who upon asking, >and hearing that would send it to him in email replied >"you should have a fee".. told him that didnt know >anything about fees. >told him that allready paid a fee of $20 dollars to >get all this material printed for the overheads... and >he said "no a fee for your transcript". >told him that didnt know anything about that either.. >only thing that really know for fees is how much is >our rent, and what the cost of our favorite foods are. >those are the only fee's that pay attention.. >geesh! money money money. >anyways... some came who had no email address. >they were mennonite's. >one of them approached lg and asked if it was ok if >she could give their address, and told her yes.. will >go next week to a copy centre and get the speech >copied for the mennonites who had no email. > >then the invitations to speak started. >one woman approached and said "in the intro it was >revealed that this is the largest crowd you will have >spoken to... would you like to do this again, we have >a large meeting coming"... >said yes, it is fine. >that didnt care how many or how few people were >there.. as long as didnt have ot be very close to >them... >if am in a room, where there is lots of room.. for >mine body to pace and such... >dont care how many people are there.. because dont see >them. > >then, another one came... >and made a plan. >she was from a school board far away from our home. >(about 8 hr drive if one was to drive). >she said, that she worked for the school board, and >that hey had a meeting on june 6th with 150 teachers.. >she wanted to ask if would come to speak to them. >said yes. >asked if she wanted lg to prepare another speech... >specifically for educators... >she said "no need. you did phenominal. I want them to >hear your exact words from today". >so, told her, that the only thing is... >that since dont have much $ cant realy come there... >but IF they could arrange for transportation . >(obviosuly it is far enough away, that either have to >fly OR they will have to provide train and a hotel the >night before the speech and the next day after the >speech would ahve to leave to come home.... so think >that the flying will be cheaper then the train, and >two nights hotel and meals). > >anyways... then, the MOST IMPORTANT audience member >arrived. > >a woman arrived. >she had tears in her eyes.. and her voice started >breaking up in crying as she started to speak. >she said "i so much wanted to hear you speak. i was >registered for this session, but i couldn't get in the >room. I was out in the hallway, and the hallway filled >with so many peopel in the doorway that i couldnt get >close to the door way" >told her "am sorry to hear you were disappointed and >didnt get to hear what you wanted to hear". >she said "im a grandmother. my 6 yr old grandson just >was diagnosed with autism... I so badly wanted to hear >you speak". >asked her if she had email. >told her will send her the speech in email. > >then another one had come to cathy, the support worker >and told her "she is excellent, do you know she can >make a living doing just this, speaking". > >so, that is pretty much how it went in there. >then, prepared to leave. >got rid of the fancy clothes, and got into normal >clothes. >changed, and almost fell in the toilet.. lol >lost perception of space and distance(depth) and >started falling towared the toilet while facing it. >put out the hands, in front, and by pure luck.. one >hand landed on the seat part of the toilet.. and didnt >go IN the water lol) >(gosh, haventplayed in the toilet for at lest 30 yrs! >LOL ) > >then, we started driving. >we went to wendys to get a meal. >by then it was 1:30 (speech was from 10:45 to 12:30 >total). > >then listened to mine favorite calming music in cathys >vehicle and she didnt talk.. and let lg stim for a few >hours.. >plaing songs over and over.. lol > >got to her office, where the other worker brought lg >home. >before we got in to town, her boss called on the cell >phone. >she spoke briefly wiht lg. >asking if had fun. >if it went well. >and if felt happy about it. >yes, yes and yes. > >dont know.. what else to say. >think that is it. > >it went well. >got to see all the evaluations. >there was a scale between 1(poor)and 5 (excellent). >got all 5's on each sheet.. except for one, where the >person made it a 5+. > >they gave lg a little card they made themselves, and >signed it by hand. >it was a nice card. > >they gave lg a gift even. >two pens. > >lg
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