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>Below is a transcript of a conversation that took >place on 01-09-04 in one of the "live" autism-related >chat channel between me (scap) and a member of >Arkansas State Autism Board, who allegedly is an HFA >adult with four college degree (or at least they said >so). (S)he was using the screen name "Marvelous". >Names of the channel and the other chatters have been >hidden to protect privacy - however, full transcript >is available. >I will not make any comments - see for yourselves. >If anyone would like to inform the Arkansas autism >society board that autistic/ASD adults DO exist in >their state, or to make any comments about their >policy to serve ONLY "parents and professionals", or >to contact that alleged "born-again Christian HFA >adult with four college degree", please contact: >Arkansas Autism Society >2001 Pershing Circle, 3rd Floor >North Little Rock, AR 72114 >(501) 682-9930 >(800) 831-4827 >http://www.familyautism.com/Arkansas.htm >OK, there it is, friends. See for yourselves...and >note the attitude of this "born-again Christian" >alleged "HFA with four college degrees" board member. >My apologies if anyone believes that my responses were >too emotional, but hope you understand why - >especially those familiar with my situation at the >moment. ><<<<<01-09-04 Friday, 8:43 pm p.t. >* Marvelous has joined #(the channel) >- >Marvelous is ~chatter@ppp029.bbe.centurytel.net *... >Marvelous End of /WHOIS list. >- >ah hi marvelous >hi Marvelous >Hi All. >hi Marvelous, it's marvelous to see you >It has been a while since I have been on. >Over a year. >hi Marvelous >i dotn think we'vemet before Marvelous >I came in about 1 1/2 years ago. >I had trouble finding this again. >I do remember some of the chatters from back then. >Are any still around here? >Iam a HF Non-Nuero_Typical. >I am Very High Functioning & I am on my state Autism >board. >I also have achieved 4 college degrees. >thats good Marvelous >I was neding soem fundraising ideas for my Autism >Society. >Do any of you have some fundraising ideas for me? >not sure Marvelous >We are trying to raise enough money to hire an >Executive Director for our Autism Society. >how about raising some money to provide jobs for >autistic adults >I am a Very High Functioning Autistic who has earned 4 >degrees. >wow >thats cool >hire the Exec on voluntary basis first and have THEM >generate enough revenue and actually EARN their salary >And I am on our State Autism board. >what state? >No one would volunteer fro a 5 day 8-5 job, would >they? >Arkansas., >well, that's what is commonly suggested for autistic >adults...why don't some well-wishers follow their own >advice >We have so many great ideas that we want to do for the >parents & their kids but need a Ex. Dor. first! >you can invite some retired exec with good >pension...they can afford to volunteer >lol scap >Marvelous...why just for "parents and their kids"????? >what about adults? >lol scap :) >how about that Grasso dude from NYSE? he just retired >with 188 mil package, he can afford >Adults is our future goal. >Does ark. have good programs for autistics? >No. >what do you mean future goal??? when your "volunteers" >OWN children grow up??? what about TODAY'S ADULTS??/ >well....neither does my wonderful state >write a letter an exutiive of a company, they may know >someone >In our state most of ours are kids or teenagers. >Marv, that's because you IGNORE adults >that's plain discrimination by age AND deceptive >advertising on behalf of ASA >I haven't met any other adults here besides my self. >have you tried to? >keep your eyes open and you will >exactly >But our membership is made up of parents of kids & >teenagers. >then it's not representative >not exclusively >and your thing should be named "Autism society of >children and parents ONLY", otherwise it is deceptive >advertising >We are trying to work with their needs. >trying but not working >and not nearly with the same expertise and vigor as >with your privilege members' needs >Adults is not our problem yet. We are dealing with >what we have NOW! >???? >well, you have adults NOW >there is a Autism society already >only you guys prefer to discriminate against them >I am talking abiut in Arkansas. >then you ignore and deny their existence >which is discrimination against them and their needs >They haven't gto in contact with us so we don't know >if they exist here. >when they do "get in contact", they get denied help >and even chastised for trying >i know what i'm talking about >hi gettin >have you tried to locate them, to invite them to join, >Not here totally. >to ASK them what's their needs are and HOW you can >help them >But they have to let us know they exist. >Marv, you said Arkansas? i'll personally locate a >bunch for you >and will tell them that according to their state board >member, they do not exist and they do not have needs >Hey scap do that here LOL >Our society has been quiet for a whiel because of low >finaces we are just starting to get active again! >and when they "let you know they exist"....i know how >they get treated >hm, I actually know someone in Little Rock who likely >fits the Asperger's criteria (though as a techie he's >missed a dx) >it does not take finances to advocate for each other >who wants to, seeks the ways. who doesn't, seeks >excuses >so far all i've heard from you here was excuses >We haev to have a Ex. Director to man the office, to >answer all the phone calls. >another excuse, and lame again >So who is going to do thsi then? >you the board, you the members >why not you? >you the people >We have regular jobs & families! >so? >that's not a valid excuse either >we can't spend 8 hours a day there. >if you have time to do things for children, you have >time to do for adults >'answer the phone calls' can mean listen and reply to >recorded messages >exactly >how about a website and email? >Remember, we are just starting the Society back up? >how about advocating and simply writing letters to >help people once in a while >so? >Here, an Executive Director of such an organization, >full time, would be about a $40k to $75k per year >position >it seems like you are starting it on the wrong foot >already >Yes, & we don't have teh money to pay that. >$75K just to answer "sorry, we do not serve adults"?? >I am trying to find a way to raise that $40,000 so we >can hore that person. >Remember we have to start from teh bottom up. >well sorry, i won't help you...although i was in >charge of a fundraising campaign for underprivileged >community college students >well, hire an HFA adult >I already have a job. >there are plenty with college or even graduate degree >i didn't say hire yourself >there are lots of them unemployed although well >educated >maybe someone out of state >We have a lot of great ideas but we need money to do >them. >btw, i'm going to quote your words on the forums for >ASD adults...hope you get some response then >For $75k the person would be working 50 to 75 hours >per week, and produce a website, quarterly or monthly >newsletter, organize and attend events, and be in >contact with local gov't >yes, and keep answering, "sorry we cannot help you, >hope you find help somewhere else >Lxxxxx, that is what we need but first we need to >raise that kind of money. >and be "celebrated" at fancy banquets sponsored by >members' dues >when you raise money, first you're gonna buy liability >insurance...when those frustrated adults sue you for >discrimination and for deceptive advertising >you will need that first >Scap, you have some ideas but it takes money to do >them. >i do have some ideas and experience on fundraising... >that is what i am trying to find. >and nope, some things can be done without any money >You mean like run a state Autism society? >recently, a small group of people took on an advocacy >project that possibly leads to overhaul of DDS in the >entire state >Who pays for the condferences & newsletters then? >no, i mean such as at least try to help people for >whom there is no help >why all you are willing to do is schmooze at the >conferences? >I am just trying to hlp us get on our feet first! >people need hands-on help, today, now, yesterday >Not at out confereces. >yeah right >We want peopel like Tony Atwood. >We had temple Grandin. >a friend recently was invited to speak at such >conference...she is autistic...of all speakers, she >was NOT offered hotel accommodations, let alone >speaker's fee >well, first you "want" people you *say* "dont' exist >to your state" >WE pay all of our speakers! >again, if this is the start you plan, you already >starting on the wrong foot >Our conferences is our biggest fund raiser. >But again it takes money to set up a conference. >conferences, fundraisers...yet when people ask for >practical (and cost-free) help, they get turned away >sometimes just a letter or a phone call would do...but >all you want to do is "conferences' >Scap, afetr we get on our feet we will be able to get >back to doing that. >you won't >excuses, excuses >well, i'm off my feet now, but i was able to actually >help in couple of such situations >Conferences is WHAT EVERYBODY wants! >????????????????????????????? >hey folks, what you want: adequate helpful services, >your rights protected and needs met, or >"conferences"??? >let's take a vote >so nobody speaks on our behalf >The parents & professionals that deal with Autistic >kids want conferences. >i'm not "everybody", and i can tell you what i want >(or rather need)...only you wont' listen >again "parents and professionals"??? >there are people mistreated, abused and discriminated >"NOW" >They are the ones that pack out the conferences. >excuse me, are you listening? i'm saying that there >are others beside them >But they make up our membership. >well, you need to expand your membership >Anyone can join. >well, why would i join if i keep hearing that "the >majority are parents and pros, and we cater to them, >and don't give a damn about you"??? >But we can't go out & find them & force them to join. >but you turn them away when they try to join >and actually, you should be going out and reaching out >to them >They are the ones taking care of you. >???? >of me?? >Parents , teachers, doctors. >here in NZ the autism society is great help if you're >a parent, maybe if you're a child, not if you're an >adult >case workers. >Marvelous, may I ask what your connection is? >Marv, NO ONE "takes care" of me...i'm an adult, i'm >done with a school, and i'm not under care of any >doctors >yet i do have a serious situation requiring ASD >community intervention...care to help personally, >Marvelous? >I am a HF autistic who is on our state Autism borad. >as a board member, you are in a position to >intervene...care to? >I use to be in herea year ago. >which state? >Ark. >hey room, note how he will keep ignoring my request >We are trying to restart our society! >sic scap >and i'm trying to ask you as a state board member for >help >and you keep evading >and everyone can see that >Go to your state Autism Society! >Each State has one. >i don't think autistic adults need to reach out if >they feel they have a reasonable reason, and frankly >i've seen too many burned by professionals >whew, that was nice, i thought he'd tell me to go >to...um, another location >so i don't blame them for not wanting to reach out >No, scap I am a BA Christian. >well, my lawyer says that the more publicity for my >case, the better...that's why i'm asking you...btw, >some people froom other states agreed to intevene >I am JUST trying to get our society up & running! >you can be BA, BB...but you don't act like one >you didn't even ask what my story is and what kind of >help i'm asking for >BA? >born-again? >Yes. >and my state "Autistic Children, Parents and Pros ONLY >Society" "doesn't serve adults, that was the answer i >got...any other Marvelous ideas???? >I came on here trying to get help to help restart our >society. >i'm waiting for the answers >well, you don't want to help, but you demand help for >money...sorry, i wont' "help" you >after being told to "Go to...!" >I am dealing with what we have in Arkansas, children & >teenagers! >do you want me to prove that you DO have adults in >your state? do you want some messages and calls and >letters to your board? >& we are just starting to have teenagers! >We just want to know they are out there. >and everyone in the room, please note that request for >help from an ASD adult got ignored by a board member >Wea want to expand our membersip. >you wanted people to listen to your request for >help...but didn't even bother to listen what's mine >Scap, would you rather all state Societies fold & >there be no help for Autistics. >last month, in a local newspaper there was a story of >a woman ended up in a same legal plight like mine, >only she was not ASD, but black and gay. Several >organization of that kind backed her up >they didn't say any bull you just gave me >they just backed her up >i'd rather they stop DISCRIMINATING AND ADVERTISING >FALSELY >marvelous, in some places that would just mean no help >for parents >We can't do ANYThing until we get off the dround. We >have to start somewhere. >once you get off the ground, you will keep >discriminating because that's how you already are and >that's what your "majority membership" would be >the adults count too as well as the parents >parents != autistics >other states societies are off the ground, but they >still discriminate against adults...explain that??? >We can't do much UNTIL we get off the ground. >btw, i'm a parent as well >Marvelous, stop giving broken record >as i said, i'm on the ground atm, but i didn't make >that excuse when people asked for help >I am just trying to help revive our socirty. >and was able to make a difference >but when i ask...... >* Marvelous has left #(the channel) >well, you'll have to "help revive" it without my input >and note he didn't even ask what my story is and to >even see whether he's able to do anything >* mxxxxx gives scap a standing ovation :) >you know, i think the best advocates should be >recruited from the department stores' sales clerks >you know why? >the persistent ones? >nope >because they got right attitude - they always ask, >"WHAT are you looking for?" and "HOW can i help you?" >or right training, probably >have you guys heard that in Canada HFA adults >petitioned to the Health Ministry to revoke grants >paid to their Autism Society for the same >discrimination reason >Its like when Jxxxxx found out he was AS he was told I >cant dx you that because according to the state adults >dont have autism >exactly, that's their story to justify denial of >services for adults >wow, so everyone on hte spectrum is magically cured >once they reach the age of majority. what a medical >breakthrough! Lol >Thats what he told Jxxxx he didnt have it anymore >lol axxxxx what a crock! >I know >But thats the states Logic >He didnt get dx as a child therefore he is HEALED LOL >lol Axxxxxx :) >because he coped with society NOT! >maybe being on teh spectrum over 18 isnt pc.......... >>>>>
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