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Date Posted: 17:47:54 03/02/02 Sat
Author: is that Texan? gb
Subject: Glad you found us. Just how tall
In reply to: Wife of tall Texan 's message, "Wow! never knew you were here!" on 09:21:52 03/02/02 Sat

How are you and the tall Texan doing? It can be difficlt getting the Social Security going. It seems they turn everybody dowm. I'm glad he got it. It's his money because he paid for the insurance when he was working. I found a link to National Marfan Foundation and wondered if you had any dealings with them? Come back soon and tell us more about Marfan's syndrom.
>My hubby has Marfan's syndrome, a genetic disorder of
the connective tissues of the body. It is insidious,
>the "outer symptoms" aren't too obvious, other than
>extreme height. He worked as a framing carpentry
>contractor until 2 years ago, when his joints would no
>longer cooperate. We DID win his Social Security
>Disability Claim without an attorney, although it took
>two long years and an administrative law judge to get
>it.
>
>I'm glad I found you folks from the Voy.Com banners.
>Will be checking back sometimes for ideas. Looks like
>a good forum here.

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