VoyForums
[ Show ]
Support VoyForums
[ Shrink ]
VoyForums Announcement: Programming and providing support for this service has been a labor of love since 1997. We are one of the few services online who values our users' privacy, and have never sold your information. We have even fought hard to defend your privacy in legal cases; however, we've done it with almost no financial support -- paying out of pocket to continue providing the service. Due to the issues imposed on us by advertisers, we also stopped hosting most ads on the forums many years ago. We hope you appreciate our efforts.

Show your support by donating any amount. (Note: We are still technically a for-profit company, so your contribution is not tax-deductible.) PayPal Acct: Feedback:

Donate to VoyForums (PayPal):

Login ] [ Contact Forum Admin ] [ Main index ] [ Post a new message ] [ Search | Check update time | Archives: 1[2]34 ]


[ Next Thread | Previous Thread | Next Message | Previous Message ]

Date Posted: 19:40:50 10/06/17 Fri
Author: frada lai
Author Host/IP: n11211984239.netvigator.com / 112.119.84.239
Subject: ¨u¨£¯e¯f

¨u¨£¯e¯f
¨u¨£¯e¯f±Ð¨|Á¿®y
https://www.youtube.com/user/Rarediseasecg
International Federation of Marfan Syndrome Organizations ¡] IFMSO ¡^
°ê»Ú°¨¤Z¤óºî¦X¯g²Õ´Áp·|
http://www.marfanworld.org/
IFMSO ¦®¦b¬°¤£¦P°ê®a¤Î¦a°Ï¤§°¨¤Z¤óºî¦X¯g¯f¤H²Õ´´£¨Ñ¥þ²y©Êªº·¾³q¥­¥x¡A²{¦³ 22 ­Ó°ê®a©Î¦a°Ï¤§²Õ´¥[¤J IFMSO ¡Cºô¯¸¦C¥X·|­û²Õ´¤§ºô¯¸¤ÎÁpµ¸¤èªk¡A¨Ã¦³¥H©¹·|ij¸ê®Æ®w¤Î³Ì·s·|ij¦w±Æ±¡ªp¡Cºô¯¸¥ç¦³°¨¤Z¤óºî¦X¯g¬ã¨s¸g¶O¤ÎÁܽд£¥æ«Øij®Ñ®ø®§¡C

The National Marfan Foundation
¥þ°ê°¨¤Z¤ó°òª÷ ( ¬ü°ê )
http://www.marfan.org/
¥Ñ°¨¤Z¤óºî¦X¯g¯f¤H¤Î®a¤H¦¨¥ß©ó 1981 ªº¦Û§U©Ê²Õ´¡C¦®¦b¦V¯f¤H¡B®aÄݤÎÂåÅ@¬É·Ç½Tµo©ñ³Ì·s°¨¤Z¤óºî¦X¯g°T®§¡A«ü¨Ñ·¾³q¥­¥x¥H¤À¨É¸gÅç¤Î¤¬¬Û¤ä«ù¡A¨Ã¤ä«ù¤Î±À°Ê¦³Ãö¦¹¯f¤§¬ã¨s¡Cºô¯¸¦³¤j¶q¦³Ãö°¨¤Z¤óºî¦X¯g¤§¤¶²Ð¡B¯f¤H¶·ª¾¤Î³Ì·s¬ã¨sµ²ªGµ¥¡C

The Canadian Marfan Association
¥[®³¤j°¨¤Z¤ó²Õ´
http://www.marfan.ca/
¥Ñ Elizabeth McHenry ¤Î¨ä¥L¯f¤H»PÂå¥Í©ó 1986 ¦¨¥ß¡A°£¦V¦V¯f¤H¡B®aÄݤÎÂåÅ@¬É·Ç½Tµo©ñ³Ì·s°¨¤Z¤óºî¦X¯g°T®§¥~¡A¨Ã­P¤O¥[±j¤½²³¹ï¦¹¯f¤§»{ÃѤÎĵı¡A¹ªÀy¯f¤H¦Û²Õ¤ä«ù¤p²Õ¡C¦¹²Õ´¥ç¤ä«ù¤Î±À°Ê¦³Ãö°¨¤Z¤óºî¦X¯g¤§¬ã¨s¡C

Marfan Association UK
­^Áp¨¹°¨¤Z¤ó²Õ´
http://www.marfan.org.uk

Stanford University Center for Marfan Syndrome and Related Connective Tissue Disorders
¥v¤¦¦ò¤j¾Ç°¨¤Z¤óºî¦X¯g¤Î¬ÛÃö³sô²Õ´¥¢½Õ¯g¬ã¨s¤¤¤ß
http://marfan.stanford.edu/

¥xÆW°¨¤Z¤§®a
http://www.marfan.org.tw/

¤é¥»ÇÚÇçÇÑÇ{Çï¨ó会
http://www.marfan.jp/
SADS¬ü°ê°òª÷·|
http://www.sads.org
SADS­^°ê°òª÷·|
http://www.sadsuk.org
­»´äÂåºÞ§½
http://www.ha.org.hk
­»´ä¤ßŦ±M¬ì¾Ç°|
http://www.hkcchk.com
±Ï¤ß¾÷¸ê°T¤Î§Þ³N°Ñ¦Òºô
http://www.aed.com.hk
Ãö¤ß±zªº¤ß
http://www.careheart.org.hk
World Heart Federation
http://www.world-heart-federation.org
BrugadaDrugs.org
http://www.brugadadrugs.org

¥»´ä©t¨à¯g±wªÌ¤Î®aÄݤ䴩¹ÎÅé¡G
http://www.jhforphandisease.org/zh/orphan_diseases/resources
¦³Ãö¯«¸g - ¦Ù¦×¯e¯f¸ê®Æ¤Î²Õ´
http://www.hknmda.org.hk/index.php?option=com_content&view=category&layout=blog&id=8&Itemid=7
http://www.hknmda.org.hk/index.php

[ Next Thread | Previous Thread | Next Message | Previous Message ]

[ Contact Forum Admin ]


Forum timezone: GMT-8
VF Version: 3.00b, ConfDB:
Before posting please read our privacy policy.
VoyForums(tm) is a Free Service from Voyager Info-Systems.
Copyright © 1998-2019 Voyager Info-Systems. All Rights Reserved.