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Date Posted: 19:40:50 10/06/17 Fri
Author: frada lai
Author Host/IP: n11211984239.netvigator.com / 112.119.84.239
Subject: uef

uef
uefШ|y
https://www.youtube.com/user/Rarediseasecg
International Federation of Marfan Syndrome Organizations ] IFMSO ^
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http://www.marfanworld.org/
IFMSO bPaΦaϤZXgfH´ѥyʪqxA{ 22 ӰaΦaϤ´[J IFMSO CCX|´pkAæH|ijƮwγ̷s|ijwƱpC禳ZXgsgOܽдijѮC

The National Marfan Foundation
갨Z ( )
http://www.marfan.org/
ѰZXgfHήaHߩ 1981 ۧUʲ´CbVfHBaݤ@ɷǽTo̷sZXgTAѷqxHɸgΤۤAäαʦfsCjqZXgСBfHγ̷ssGC

The Canadian Marfan Association
[jZ´
http://www.marfan.ca/
Elizabeth McHenry ΨLfHPͩ 1986 ߡAVVfHBaݤ@ɷǽTo̷sZXgT~AíPO[j惡f{ѤĵıAyfH۲դpաC´αʦZXgsC

Marfan Association UK
^pZ´
http://www.marfan.org.uk

Stanford University Center for Marfan Syndrome and Related Connective Tissue Disorders
vjǰZXgάsô´կgs
http://marfan.stanford.edu/

xWZa
http://www.marfan.org.tw/

饻{会
http://www.marfan.jp/
SADS|
http://www.sads.org
SADS^|
http://www.sadsuk.org
ާ
http://www.ha.org.hk
ŦMǰ|
http://www.hkcchk.com
Ϥ߾TΧ޳NѦҺ
http://www.aed.com.hk
߱z
http://www.careheart.org.hk
World Heart Federation
http://www.world-heart-federation.org
BrugadaDrugs.org
http://www.brugadadrugs.org

tgw̤ήaݤ䴩G
http://www.jhforphandisease.org/zh/orphan_diseases/resources
g - ٦ׯefƤβ´
http://www.hknmda.org.hk/index.php?option=com_content&view=category&layout=blog&id=8&Itemid=7
http://www.hknmda.org.hk/index.php

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