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Date Posted: 21:14:54 10/06/17 Fri
Author: jojo
Author Host/IP: n11211984239.netvigator.com / 112.119.84.239
Subject: 香港的罕病患者組織

香港的罕病患者組織
香港雷特氏症協會
Hong Kong Rett Syndrome Association
http://www.hkrett.org/
香港天使綜合症基金會
Hong Kong Angelman Syndrome Foundation
http://www.hkasf.org/
香港結節性硬化性協會
Tuberous Sclerosis Complex Association of Hong Kong
https://www.facebook.com/groups/465376130305528/?fref=ts
香港神經纖維瘤協會
Hong Kong Neurofibromatosis Association
https://hknfa.org.hk/
小而同罕有骨骼疾病基金會
Little People of Hong Kong
http://www.lphk.org/
少青風協會
Hong Kong Paediatric Rheumatism Association
http://www.hkpra.org/
香港小腦萎縮症協會
Hong Kong Spinocerebellar Ataxia Association
http://www.hkscaa.org/
香港肌健協會
Hong Kong Neuro-muscular Disease Association
http://www.hknmda.org.hk/
香港罕見疾病關注組
Hong Kong Rare Disease Concern Group
http://rarediseasecg.com/tc/aboutus.php
香港紅十字會甘迺迪中心校友會
Hong Kong Red Cross John F. Kennedy Centre Alumni Association
https://www.facebook.com/jfkcaa
香港病人組織聯盟
Hong Kong Alliance of Patients’ Organization
http://www.hkapo.org.hk/
香港馬凡氏綜合症協會
Hong Kong Marfan Syndrome Association
http://www.marfan.org.hk/
香港斜視重影病患者協會
Hong Kong Association of Squint and Double Vision Sufferers
https://www.sites.google.com/site/hkasdvs/
香港粘多糖暨罕有遺傳病互助小組
Hong Kong Mucopolysaccharidoses & Rare Genetic Diseases Mutual Aid Group
http://www.hk-mps.com/
香港復康會
The Hong Kong Society for Rehabilitation
http://www.rehabsociety.org.hk/
香港視網膜病變協會
Retina Hong Kong
http://www.retina.org.hk/
夏約書孤兒症基金會
Joshua Hellmann Foundation for Orphan Disease
http://www.jhforphandisease.org/zh/who_we_are/mission
香港卓護義工協會
Hong Kong Credible Care Volunteers Association Limited
http://www.hkccva.com/
遺傳性心律基金會
Sudden Arrhythmia Death Syndromes Foundation
http://www.sadshk.org/zh/founder.php
PNH病友之家(香港站)-
http://hk.pnhchina.org/
罕見疾病系列
https://www.hk01.com/%E6%B8%AF%E8%81%9E/9022/-%E7%BD%95%E8%A6%8B%E7%96%BE%E7%97%85%E7%B3%BB%E5%88%97-%E4%B8%80-%E6%AF%8D%E5%AD%90%E5%85%B5%E5%A5%AE%E6%88%B0%E6%B2%92%E5%90%8D%E5%AD%97%E7%9A%84%E7%97%85%E9%AD%94

https://www.hk01.com/%E6%B8%AF%E8%81%9E/9035/-%E7%BD%95%E8%A6%8B%E7%96%BE%E7%97%85%E7%B3%BB%E5%88%97-%E4%BA%8C-%E8%9C%98%E8%9B%9B%E4%BA%BA%E7%97%87%E6%82%A3%E8%80%85-%E9%AB%98%E5%A4%A7%E8%BA%AB%E8%BB%80%E8%97%8F%E8%84%86%E5%BC%B1%E5%BF%83%E7%AA%A9

https://www.hk01.com/%E6%B8%AF%E8%81%9E/9044/-%E7%BD%95%E8%A6%8B%E7%96%BE%E7%97%85%E7%B3%BB%E5%88%97-%E4%B8%89-%E6%82%A3%E8%80%85%E4%B9%8B%E8%8B%A6-%E9%9B%A3%E7%A2%BA%E8%A8%BA%E8%87%B4%E9%9B%A3%E6%89%BE%E6%94%AF%E6%8F%B4

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