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Date Posted: 21:53:58 11/08/17 Wed
Author: johnny
Author Host/IP: d1-210-0-143-118-on-nets.com / 118.143.0.210
Subject: 中國國家罕見病註冊體系

中國國家罕見病註冊體系

http://www.nrdrs.org/app/rare/index.html

http://www.nrdrs.org/


中國出生缺陷干預救助基金會

http://www.csqx.org.cn/

知識庫

http://www.csqx.org.cn/list.aspx?id=344582800383

愛佑慈善基金會

http://www.ayfoundation.org/

法布雷病友會

http://wap.henizaiyiqi.com/fabry/

PID加油寶貝中國關愛中心

https://zuciwang.com/show/639187.html

北京病痛挑戰公益基金會

http://www.chinaicf.org/

中國罕見病愛心會

http://www.grdla.org/

PKU聯盟的微博_微博

https://www.weibo.com/pkuunion

中國肯尼迪病友會

https://kdachina.wohenok.com/

克羅恩病友協會

http://wap.henizaiyiqi.com/crohn/

http://www.ibdlife.info/forum.php

ITP家園-血小板病友之家

http://www.itphome.org/

神經纖維瘤病友會

http://www.chinanf.org/

神經內分泌腫瘤資訊網

http://www.net.org.tw/

病友之家

http://www.cnpu.org/portal.php

http://www.cnpu.org/

rett家庭關愛中心

http://www.chinarfcc.org/index.html

http://www.chinarfcc.org/

運動神經元家園

http://www.alshome.com/forum.php
http://www.alshome.com/

炎症性腸病家園

http://www.ibdbbs.com/

北京康心馬凡綜合徵關愛中心

http://www.marfan.org.cn/

腓骨肌萎縮症病友會

http://www.cmtchina.org/

中華民國運動神經元疾病病友協會(漸凍人協會)

http://www.mnda.org.tw/

台灣脊髓肌肉萎縮症病友協會

http://www.taiwansma.org.tw/

 魚鱗病

http://zhuanti.qm120.com/pifu/pifuke/yulinbing/

 中國血液病病友會

http://www.zgxybzx.com/

兒童噬血細胞綜合徵網站

http://www.hlhcn.cn/

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