Re: Vulvar Cancer......feeling alone -- <h2>Gyn-Gals Open Forum Message Board</h2>

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Subject: Re: Vulvar Cancer......feeling alone

Author:
Joan

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Date Posted: Thursday, August 17, 05:57:28pm
Author Host/IP: 24.167.124.125
In reply to: Cheryl 's message, "Vulvar Cancer......feeling alone" on Wednesday, August 09, 03:42:45pm

Hi Cheryl,

I had a radical vulvectomy in May 2006. I'm here for you.
My doctor could not find anyone for me to talk with prior to surgery. My gyn/onc did a good job of explaining the surgery. Even with him telling me about the surgery and process, I did not fully comprehend what the process meant until I went through it. I had the pubic sentinal nodes removed on each side. I didn't grasp, thank god, what he meant when told radiology would inject dye to find the nodes.
A few weeks after surgery, i felt if someone could lift my head and neck off my body they would be able to look straight through me and see the ground below. Slowly that feeling has gone away. I am still experiencing many thoughts and emotions.
The surgery has changed me in many ways.
I'm here if you need me.
Hugs,
Joan

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[> Subject: Re: Vulvar Cancer......feeling alone

Author:
Michelle
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Date Posted: Friday, September 01, 08:30:36am
Author Host/IP: 65.23.63.200

>I had a partial radical vulvectomy in March of this
>year, I searched the web, not finding any support and
>even when I asked my doctor for someone who was a
>survivor, he could give me nobody. I went into my
>surgery feeling all alone and the only one with this
>type of thing happening. My cancer is vulvar
>cancer/melinoma....only about 3% out of the already
>rare vulvar cancer. I am still needing support and
>have started going to the only thing close to me or
>that I could find... a womens support group, all of
>these ladies that I have meant have had breast cancer.
>Talking to them does help, but I still need to have
>someone who knows and understands what I am going
>through.

Please do a search through Yahoo Groups - there are a few that are just filled with the most wonderful women that have been through this. You are NOT alone.

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