how are you doing after day 5?? -- A DIFFERENT KIND OF MOUNTAIN

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Subject: how are you doing after day 5??
Author: Mark	[ Next Thread \| Previous Thread \| Next Message \| Previous Message ] Date Posted: 16:21:36 06/14/05 Tue how are you feeling? are the meds hard to deal with? has the radiation had any affect on you or your hair? sorry about the 30 questions,just curious. [ Next Thread \| Previous Thread \| Next Message \| Previous Message ]

Replies:

[> Subject:

Hello BIG BRO!

Author:

Lil Sis
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Date Posted: 21:23:09 06/14/05 Tue

Thanks for calling to check on me today!

The radiation seems to be going to okay. The first couple days I felt a little confusion as I got off the table abut this week has been better. Five days down, that's a quarter of the way through ALREADY!

The meds are the toughest part. Trying to remember what to take when. Plus I am SOOOO stoned over I take the anti-inflammatory. Dr. Fowler reduced it to three per day instead of four, thank Goodness. But about an hour after I take it, I pretty much have a hard time functioning then I have to lay down. I feel the best when I wake up, less groggy. I am flying pretty high RIGHT NOW! So I hope this sounds okay.

Ask all the questions you want, I don't mind at all. I don't feel like it's 30 questions.

My head has been itching LIKE CRAZY so I know it's coming to lose the hair. They told me yesterday that it won't be a gradual week long process like with chemo. Once it starts, it should be out in like two days. Hope I remember to have a bag handy to put it all in since I've been saving it everytime.

The doctor saw me itching like crazy today so he put me on an anti-allergy pill today. It's working already. All the itching is quite a nuisance so it's refreshing to feel better from that perspective.

I love you so much and I thank you so much for checking in on me. I can't even begin to tell you the gratitude I have. Remember I want a ride in RATTRAP!!

[> [> Subject:

Stacy the Stoner!

Author:
Cliff
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Date Posted: 22:13:54 06/14/05 Tue

Hi Stacy!

You know, you could probably sell those anti-inflammatories on the street if you wanted...

Are you going to sport the cue-ball look, or buy yourself some temporary hair? I know of someone who runs a shop at (or near) North Arundel Hospital in Glen Burnie, catering to cancer patients who want to maintain their appearance. I know she carries wigs, among other things. She told me that insurance usually pays, and if it doesn't, she gets various grants that usually cover the cost. Just thought I'd let you know.

So I guess you won't want to go to dinner and a car cruise while you're stoned and bald, huh?

[> [> [> Subject:

CUE BALL

Author:

Stacy
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Date Posted: 23:32:06 06/14/05 Tue

I could probably get some serious cash for what these pills do for you. Man!!

I always choose the cue ball look. It's too hot for temporary hair. I have a couple really nice wigs that my insurance paid for that I keep for occassions that it would just be nice to have hair but generally I'll sport the cue ball look. I'll be sure to get a picture on here of myself after I lose it so there's no shock value for everyone.

Once things get a little more under control I'll be up for dinner and a car cruise but right now things are just too crazy for me. I never know how I'm going to be feeling from one minute to the next. I don't think you'd want to be responsible for me when I can't function. Plus, unfortunately this anti-inflammatory causes A LOT of belching. Uncontrollable belching. Loud belching. I could possibly embarrace you. These drugs also cause yeast infections in the mouth which I unfortunately have developed so I'm on another drug for that. It's helping but I think it's in my esophagus also. That causes hiccupping. I make all kinds of noises these days. Sometimes it's funny and sometimes it's a nuisance.

One of the weirdest things so far has been that "trigger" that you have to tell you not to do something, it is not working properly. I have had to tell everyone to make sure I don't walk out into traffic and I am DEAD SERIOUS. I know I shouldn't and I know the result of what could happen if I do but once I get out of the car I'm just ready to start walking. That trigger doesn't go off to tell me not to go. I am so glad I told my brother to watch me last night because I was ready to just keep walking when he had to grab my hand to stop me because a truck was coming. It's not joke, it's real. I told the doctor about it today. He didn't have a response. And I don't have to feel stoned to be that way. I'm wondering if it's because the cancer is in the cerebellum, the place where it affects your balance. I just get going and act like I'm on a mission then when I try to stop walking I feel like my body is going to keep going. Very weird.

Well, I've laid down for about an hour so I feel a little more coherent right now. The anti-inflammatory causes insomnia so I wake up a lot in the night. I'm glad I keep a journal. I've been writing like crazy. Especially at night.

[> [> Subject: Thinking of you

Author:
Connie
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Date Posted: 00:31:28 06/15/05 Wed

Thinking of you Stacy
I had been taking a "vacation" from the word cancer after my last check up in May; my last "regular" check up after the surgery and radiation. The oncologist said I would not need to see her until August. Then on Monday went in for my monthly flush of my port and ended up with another ultra-sound and an aspiration of my left breast again. They are hoping that it is just an infection, but this is how it all started last August. The pain has come back and the redness like in August. Once again I am back on pills. So crossing my fingers.
Monday had been the first time I had gone with out a wig or scarf. You may like the cue-ball look, but my head looks like a wooden block. All square !!!! haaa haa
So sorry to here that you can't even ride your scooter. That must be a real bummer. Glad to hear that you have help , however. Keep us posted.
Connie

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