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>hi Robin, Louis, Stevo and all the people from the old >forum. i only visited and posted a couple of times, >but i can't state enough how important it is to so >many people, myself included, that this forum is >continuing, so thanks go to everyone involved in >maintaining it... > >i have had problems which resemble an 'atypical penis >fracture' for around a year and a half now, and >because i still don't have a diagnosis, i'm still >waiting to hear from the NHS right now, (here in the >uK) whether they will shell out and pay for >scans/treatment to determine what's wrong. the >unbelievable lack of support is ridiculous...basically >their argument is that i am not worth spending money >from their limited budget on, because they can't >figure out a diagnosis for me yet. doctors/urologists >have examined me, have seen photos of my erect penis >bending to the left, and have straight away said >'peyronies' as usual, despite them not being able at >all to feel any plaques/scar tissue, which in truth is >the only definite way of saying that you have >peyronies. > >i know that i don't have peyronies disease, from >researching cases on the internet (which annoys >doctors) and reading stories from here. i dont have >any 'disease' - my fracture/loss of sensation was a >result of an accident... a direct physical, mechanical >cause. the reason they have said 'peyronies' so far, >is > >a)because they've eliminated everything else, and in >their minds it's the only thing it can be and > >b)the photos i took of my penis for them to see the >bend were of course of full erections; as no bend can >be seen in flaccid state. > >my argument is that, by looking at the fully erect >penis, they aren't seeing the full picture and so >don't understand what i'm trying to explain. a >'fracture' like mine causes a kink rather than a bend; >this kink can clearly be seen when my penis is >semi-erect, and i can see some sort of tissue damage >where the kink starts. as the penis becomes fully >erect, the penis stretches out and 'allows' for the >kink, and arcs out smoothly to the left, making it >appear to the doctor that there is a consistent curve. > >what i want to do is help the doctor by taking loads >of pictures of these different situations, semi-erect >etc, and put the photos on aome paper where i can >write explanations. who knows how long it would be, >maybe even a small portfolio or something lol, but i >reckon it will get my message across more effectively. > >because as you know, at the moment i am getting >nowhere with the NHS - i am annoyed at them for >discounting anything other than peyronies and being so >adamant, and they are annoyed at me because i won't >accept their wrong diagnosis

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