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Date Posted: 13:45:05 04/02/12 Mon
Author: Ravenbeauty
Subject: Update.......................................

Hey Guys,



I know I've barely been around these days, but I've been just trying to absorb what is happening here. I still do not have results of the Bone Scan that was done last Tuesday, which is incredibly mind numbing. I put a call in to my Oncologist and he actually returned the call over the weekend to say that it has not been faxed to him yet (you have to babysit absolutely everything when it comes to medical care). I'm putting a call into the hospital first thing tomorrow to make sure someone hand faxes the results over to him. We have another meeting with him on Tuesday to discuss more fully the results from the PET scan and Bone scan (hoping report will have been faxed to him by then on the Bone scan).

As some of you know, the PET scan revealed that it's in my Lymphnodes now. They also see a thickening in my Thorax not seen in any prior PET scans with extremely high uptake. This has me sick because Angiosarcoma loves the heart and lungs. Because I am fighting two types of cancer (Angiosarcoma and Infiltrating Ductal Carcinoma), they want those nodes out now to determine which cancer it's coming from. Everything is just crazy right now. I am scared to death about Thursday because it is not being done under anything but lots of local. The problem is that we are out of time on this. The Angiosarcoma is spreading too rapidly on me and it won't wait three weeks for a hospital to make room for the procedure. The plastic surgeon knows this all too well after seeing it. They feel they will need to do (2) skin grafts taken from my thigh because he does not think he can close up the wide recession he needs to do otherwise. Needless to say, I am on edge. Either way, it has to come off now whether I am perfectly numb or not. My Oncologist is calling the new plastic surgeon tomorrow to see if he will stretch for us and remove the hot nodes as well (it's usually a breast surgeon's job). The only positive is that the lesion on my spine is gone. They did not see it on this past PET scan (but again waiting for Bone scan results).

Please know that when I called in to the radio special in my honor over at RHeart Radio the other day to say goodbye, it's not that I am giving up. It's that things are beginning to look pretty dark and I wasn't sure that I would get another opportunity to do so with Silas's show now gone. I wanted to get in and just thank you guys for your love and support over the years in case things get worse and quickly. Trust me when I say that I am literally throwing everything I can at this thing. Only juicing particular juices and fruits known to knock cancer back. There are certain mushrooms that Sloan Kettering found to be effective against cancer that I now have on order as well. Taking Super Green along with Green Magma daily. The list is a long one (bought out everything that sounded promising). It's worth a try. Taking Iodoral to try to absorb some of the toxic radiation that put me here in the first place with this Angiosarcoma.

At the risk of sounding like a broken record, your prayers and notes are like a giant lighthouse in a very dark storm. They mean the world to me. YOU mean the world to me.

As an aside, thank you guys so much for making sure that I received credit on my Robin is alive and being held against her will scoop that I posted before she was even dead (back in January). It was just a really sweet thing to see, and it gave me a much-needed smile. In that vein, I am only now catching up slightly on e-mails from some of you. My longtime source says that The Revolution is the best thing that could have ever happened to GH. I could really use some uplifting news right now (we all could). Keep your fingers crossed (they never counted on the Revolution doing THIS badly). They are in a state of shock over this. This could be a game changer. Either way, we will know soon enough (announcement is coming). Keep in mind that if GH is saved for another year, some of those destined to return will most likely not be returning now as they were simply going to be part of a major Fireworks display in the end as a tribute to the fans. You take the bad with the good and make the best of it. Look for news on more of my scoops to make it to the announcement phase here shortly (Ted King may be the first one). Remember what I said a few months ago "AND THE DEAD SHALL RISE" (and indeed they shall)!

I love you guys. Not even remotely looking forward to this upcoming week for many reasons, but so grateful for you. I hope everyone has a wonderful week. Thank you....XOXO

P.S. Bless you for all of your research and the many tips you have passed my way. Many of which I have incorporated into my new routine as a result. God bless you for that and so much more! :)

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Replies:

[> Re: Update....................................... -- someone who cares, 13:49:18 04/02/12 Mon [1]

Raven you are my hero with your braveness. I hope to someday be as strong and amazing as you are. Good luck top you.

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[> Much love to you, Raven. You have all my love and support. You are one tough chick. -- LAwoman, 15:28:40 04/02/12 Mon [1]


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[> Re: Update....................................... -- Athene c., 21:26:48 04/02/12 Mon [1]

Sending you so much white light to wrap you in peace and strength. Hang in there and know you are loved.

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[> Re: Update....................................... -- Meg, 22:31:41 04/02/12 Mon [1]

Raven thanks again for updating us. I don't know if anyone has mentioned this yet, but another thing you could add to your diet is drinking Kefir. I have read a lot of positive studies about its effect on breast cancer. I am praying for you every day!

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[> [> Re: Update....................................... -- Maria, 08:57:59 04/05/12 Thu [1]

A wonderful and brave fight, Raven, give it all you've got! We are praying for you and sending you healing energy from everywhere. God bless you.

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[> Re: Update....................................... -- Lucy L, 23:03:05 04/02/12 Mon [1]

Raven, your strength and grace continue to astound me....you really are an inspiration to us all. You are so strong & brave.....keep fighting as hard as you are right now, we are all praying & pulling for you. Miracles do happen & you're gonna get one! As always, sending you positive & healing thoughts & prayers.

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[> Re: Update....................................... -- Angela, 23:41:09 04/02/12 Mon [1]

So glad to hear that you still have that fighting spirit, Raven! Keep it up! All the best to you and your team of doctors. Kick cancer's patootie!!!!!!!!!!!

Angela

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[> Re: Update....................................... -- Ballerina (Dancingw/joyfuldefiance), 00:15:13 04/03/12 Tue [1]

Despite what looks grim and uncompromising, I know you are
still here and continuing to hold your head up and squarely face this demon that is cancer. You will be victorious. Our prayers are being heard. They will go on as will you. Thank you for the updates on yourself as well
as the little tid-bits on GH. In spite of your medical metings that are coming up, try to enjoy a peaceful Passover/Easter week and know that you are loved. Hugs to you darlin'.

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[> Re: Update....................................... -- Thinking of you, 02:02:35 04/03/12 Tue [1]

Raven, Like many others, I am new to this blog. I've been following you for about a year, but never written. You have touched my heart these past months with your bravery and strength. I find myself thinking about you, and wondering how you're doing all the time. As a GH fan since I was a child, I have looked forward to, and enjoyed your column, but now you must take care of yourself. Fight with all that you have, and never give up. You are an inspiration to all those who follow you, and we are all fighting along with you. I wish you the very best outcome with this horrible battle, and please remember, you're not alone.

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[> Re: Update....................................... -- Anonymous, 02:04:02 04/03/12 Tue [1]

Hi Raven,

Glad that Sloan Kettering is involved. Healing on your spine a positive. One step at a time. It's so true you have to keep on top of everybody to get things moving along especially when you see that something has not been done. Get the whip out after them Raven (just kidding) I know that a lot has to be done yet, but I know you can do this. Wishing you the best and stay positive. X0X0 Right back at you.

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[> Re: Update....................................... -- llanviewlovely, 02:05:35 04/03/12 Tue [1]

Raven, it is so good to hear from you once again! I know that you must be terrified, but remember to take God into that operating room with you and ask him to hold your hand, he is STILL in the miracle working business and we are all praying for you as well, fight with all your might!!! We love you Raven.

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[> Re: Update....................................... -- guest, 05:17:24 04/03/12 Tue [1]

Keep on fighting...I am so sorry for what you are going through

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[> Re: Update....................................... -- Silent-Until-Now, 05:58:19 04/03/12 Tue [1]

Sending you prayers, wishes, and positive energy for your strength and determination. May it and the well-wishes of all those whose lives you've touched serve as fuel for you as you push through this. You are an amazing person. I and we see that, and I hope you can, too. ALL the BEST to you.

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[> Re: Update....................................... -- Kira, 06:54:59 04/03/12 Tue [1]

Keep fighting! We are all still with you!

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[> Re: Update.....Sloan-Kettering research -- Izzy (hopeful), 07:16:08 04/03/12 Tue [1]

Raven, please ask about a drug made by Bayer. Someone mentioned their father (Stage 4 angiosarcoma) being treated with it at Sloan-Kettering. They said it had stabilized his cancer. The reference to it is "experimental", but the post is almost five years old. It might not be experimental anymore! Here's the post: http://www.cancercompass.com/message-board/message/all,13890,0.htm.

You may already know about this website: cureasc.org
It was started by two women with angiosarcoma. This page has very concise information on angiosarcoma research projects at Sloan-Kettering: http://cureasc.org/angiosarcoma-research/

Please take a look at the last section on using targeted toxins instead of traditional chemotherapy. It sounds so promising!

I know that you will beat this. XOXO

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[> Re: Update....................................... -- Sydney F, 07:20:49 04/03/12 Tue [1]

Hi Ravie,
It's Sydney F, from FB. I gave it up for lent, but have missed seeing your updates, and being a part of your FB wall chats/convos. I have been praying for you, and I think about you every day. You are blessed with strength, and you have a community who adores you. You have brought us so much happiness over the years, and we love you for it. We are all holding you in the light!
Love, Sydney

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[> Re: Update....................................... -- Karen, 08:19:49 04/03/12 Tue [1]

A friend of mine at the gym who was a medic in Vietnam told me to go on You Tube and search for How to Make Hemp Oil. He said it has been very successful in fighting cancer. I am passing this info on to you in hopes that it could help. Good Luck and keep up the fight!

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[> Re: Update....................................... -- Johnny B., 09:00:31 04/03/12 Tue [1]

Raven, I'm glad to hear you say that you haven't given up. I am rooting for you to beat this thing and come back better than ever.

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[> Re: Update....................................... -- Jean D., 09:37:51 04/03/12 Tue [1]

You must be a truly amazing lady to have so many people, most who have never met you, rooting for you like this. We are all so concerned about you and continue to send up prayers in your behalf. Please keep us informed as you get new reports from the Drs. Best of Luck~~Love you!

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[> Re: Update....................................... -- Donna (Thankful), 10:39:29 04/03/12 Tue [1]

Hello Raven, I have never written to you before, but I wanted to take this time to thank you. You have always told the truth without holding back - this goes for soap spoilers, and more importantly about your personal battles. The love you feel from your readers is a reflection of the honesty and care you have given over the years. You have been appreciated by many of us. I can appreciated the frustrations you have had personally and professionally, yet you have forged ahead and with dignity. I know you will continue to do so, and I pray you will focus on your strength as you go forward. Sending prayers that you will find a blessing in each day, as you have been a blessing to so many more than you know.

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[> Re: Update....................................... -- Monika, 10:40:29 04/03/12 Tue [1]

You are doing amazing Raven!! You hang in there girl!!

It's not clear from this message, but your new plastic surgeon is removing the cancer at the incision site, is that the main surgery?

I'm hoping that those nodes are related to the breast cancer, not the angiosarcoma.

You're fighting on so many fronts, I'm sending you all the positive vibes possible. I was also cheering when I saw Robin the other day. You are one of the leading advocates of the soap genre, and you've been making a huge difference to how that battle is unrolling. Now, I hope that all of us can help support you in your health battle.

Big, BIG, hugs Raven. You're doing awesome. You are making a difference -- on both fronts!!

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[> Re: Update....................................... -- Laura C (So good to hear from you), 10:47:48 04/03/12 Tue [1]

I used to check your page often for soap updates. Now I check it obsessively just to hear how you are doing. You are an amazing spirit! Keep up the fight! We're all pulling for you. xoxo

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[> Re: Update....................................... -- Daryl (disappointed), 21:36:56 04/03/12 Tue [1]

you are an amazing woman ... stay strong, stay angry at the cancer ... know you are loved

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[> Re: Update....................................... -- Hannah (many, many hugs and love), 01:42:07 04/04/12 Wed [1]

Dear Ravenbeauty,

Please look up the benefits of green tea/green tea extract and cranberry capsules. Both are immune system warriors.
Many, many hugs & love,
Hannah

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[> Re: Update....................................... -- BarbaraDarlin, 02:51:40 04/04/12 Wed [1]

As always, wishing you ALL the best...from doctors to prognosis. You have the strength of 10 people and it will bring you through this.

As you know, you're in all our minds and prayers.

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[> Re: Update....................................... -- Jobbey, 10:51:01 04/04/12 Wed [1]

You are in my thoughts. So sorry that you (and anyone else for that matter) has to go through something like this. Sending you positive vibes and lots of love.

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[> Meeting with Oncologist...................... -- Ravenbeauty, 11:47:07 04/04/12 Wed [1]

Hey Guys,

Just got back from the Oncologist. Very thorough discussion. He's more concerned about getting the Angiosarcoma off me than the Lymphnodes right now (the two that showed up as hot). He said that it would be too much for me to do all of this on Thursday. Waiting to hear back from the plastic surgeon now about Thursday to see if we are dropping SOME of what we were planning on doing that day and just focusing on getting the Angiosarcoma (my Oncologist felt that even the scalp excision and graft may be to much for me to handle with what they already have planned to get the Angiosarcoma off the incision area again). As it is, I will need at least one graft for the incision area where it's growing like crazy. He said that I picked a sharp plastic surgeon and that he liked him (good sign). They had a conversation today by phone about the surgery on Thursday.

My Oncologist said that they held a meeting over my case with the pathology department as well. They are sending out my samples to a special lab to see if the samples are reactive with the drug Gleevec. If so, he is strongly recommending that we try it. There isn't much that can control Angiosarcoma so this is a longshot. If it's reactive to the Gleevec, it would be considered an off label prescription for the drug and it's insanely expensive (Probably some programs out there to help, but I'm not there yet). Not sure how I even feel about this as it's a form of Chemo usually reserved for Leukemia (ironically enough my mom died of Leukemia/AML). Really need to sort all of this out and think this through as this drug is something you stay on instead of just doing it short term. The side effects are worse than the cancer itself and may not even work anyway so I have a great deal to think through. He strongly cautioned me against using DCA as some have died taking it, but he had no issues with the mushrooms (Maitake or Reishi), juicing, or the ESSIAC which he knows about. He really wants me to stay away from DCA. Blood work was OK except that it looks like I may have Anemia which they said is somewhat common with Angiosarcoma (RDW & MCV off).

One piece of good news in this dark cloud and that is this:

THE FULL BODY BONE SCAN WAS CLEAN (the PET was not, but at least the Bone scan was)!!!

Finally, SOME good news! I am scared about the surgery on Thursday because it's being done with local and may need to be repeated. My Oncologist said that he and the plastic surgeon discussed this possibility as it's hard to get clean margins with Angiosarcoma. Praying that the margins are clear and that it does not spread any further than these two nodes. I'm not good with pain, so I am hoping it's Percocet they are giving me as Morphine, Demerol, and others don't do much for me. I'm ready with my NAC (N-Acetyl Cysteine) to keep the Acetaminophen damage down to a minimum from the Percocet (or Vicodin). Just keeping you in the loop. I feel like I could sleep for a month right now. Just want this over with. Thank you guys so much for the prayers (I am beginning to believe that this may prove more powerful than any medicine they can give me). Thank you so much for your prayers, suggestions, love, and incredible support. I don't know how I am going to feel on Thursday so you may or may not hear from me for a bit. Playing it by ear. XOXO................

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[> [> Re: Meeting with Oncologist...................... -- MaryKay, 12:17:12 04/04/12 Wed [1]

Good on the bone scan!
More love to you!

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[> [> [> Re: Meeting with Oncologist...................... -- Melina, 08:41:57 04/06/12 Fri [1]

Raven, much love and prayers are being sent your way... So glad to hear about your juicing and drinking the essiac tea. May I also suggest reading the book "Eat Right 4 your blood type"? It has been a miracle for our family. Some foods that you are eating may actually be toxic for your blood type and others can be like medicine for your body and can help in great ways. Take care of yourself, we all love you dearly.

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[> [> Re: Meeting with Oncologist...................... -- soaplover, 12:17:16 04/04/12 Wed [1]

Thanks so much for letting us know so quickly. I am EC STIC that you got soom good news. Hopefully this is the first of much more (good news). You are in my prayers daily and trying to send lots of positive energy. You really are a very brave warrior Goddess!!!

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[> [> Re: Meeting with Oncologist...................... -- Nancy P, 12:23:57 04/04/12 Wed [1]

Raven,

I'm glad that that you had good news about the bone scan being clean.

I'm saying prayers for you that the surgery goes well on Thursday, and the you heal quickly.

Nancy P

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[> [> Re: Meeting with Oncologist...................... -- Anonymous, 12:44:39 04/04/12 Wed [1]

I am so happy that you have received some good news. He sounds like a smart doctor. Tell the doctor that you can't tolerate pain. I am sure that they can come up with some alternative for the pain. At this stage of the game I would do whatever it takes. Keep believing and stay positive. XOXO

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[> [> Re: Meeting with Oncologist...................... -- tamalemama_, 13:57:56 04/04/12 Wed [1]

Raven, Thanks for the update. Still praying for you and have so much hope and faith that you will pull through this. We'll all be thinking about you on Thursday and sending you lots of love.

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[> [> Re: Meeting with Oncologist...................... -- Daryl (hopeful), 22:26:02 04/04/12 Wed [1]

My friend, that is good news .. tempered of course with the need for the surgery and drugs ... if I was where you are I believe I would grasp at any straw the doctors offered ... I hope that the Gleevac works for you .. never was much of a prayer but as I said before stay strong, stay angry this hideous cancer is in you and hold onto the positive energy you are getting from those of us who care about you!

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[> [> Re: Meeting with Oncologist...................... -- Emjay, 23:11:38 04/04/12 Wed [1]

Very glad about the bone scan news. I will be thinking of you, sending up prayers and lots of hugs for you tomorrow and every day. You are a true inspiration.

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[> [> Re: Meeting with Oncologist...................... -- mamajj, 01:52:41 04/05/12 Thu [1]

OH That is such great news about your bone sacn. All the positivity is paying off. Will say extra prayer for you on Thursday. Stay strong.

Much love,
mamajj

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[> [> Re: Meeting with Oncologist...................... -- Meg (Hopeful), 07:04:39 04/05/12 Thu [1]

Thanks so much for always keeping us in the loop. I am feeling very hopeful with the results of the bone scan! It is great news! I am praying for you Thursday and everyday.

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[> [> Re: Meeting with Oncologist...................... -- John B (Hugs, Prayers and Lots of Love), 07:36:22 04/05/12 Thu [1]

Dear Raven:

Thanks for the update. Glad there was good news on the bone scan. Sending out hugs, prayers and lots of love to you. Sounds like you have good doctors in place and you have an army of loyal fans and friends out here praying for you and a miracle. We'll all be thinking about you and praying real hard on Thursday. Hopefully you'll be able to feel the love and comfort we're sending your way. Just close your eyes and think about us and let the love wash over you. It's here and it's real. BIG HUGS!!!!!

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[> [> Re: Meeting with Oncologist...................... -- MBmomof3, 09:51:38 04/05/12 Thu [1]

Stay strong. Sending light & love.

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[> [> Re: Meeting with Oncologist...................... -- Angela, 10:24:35 04/05/12 Thu [1]

Yeah for the clean bone scan!!!! So happy to hear that!

Will be saying a special prayer for you on Thursday:)

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[> [> [> RX assistance....Programs by Medicine makers -- Marie, 13:58:42 04/05/12 Thu [1]

Try contacting Novartis to see if you can get Gleevec, if you decide thats what you want to do.

Postitive energy and prayers sent your way Raven.


http://www.rxassist.org/Search/Prog_Details.cfm?program_Id=202&PD_Id=539&Drug_Id=1099&Company_Id=32&search_type=2&CFID=8590821&CFTOKEN=39241609

Patient Assistance Program That Pharmacuetical Companies have.

Novartis
1800-277-2254

http://www.pharma.us.novartis.com/info/about-us/our-patient-caregiver-resources/paf-enrollment.jsp?usertrack.filter_applied=true&NovaId=4029462041659068671

NOVARTIS PHARMACEUTICALS CORPORATION
Novartis Oncology Patient Assistance Program
Gleevec (imatinib mesylate )

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[> [> Re: Meeting with Oncologist...................... -- Anonymous, 10:47:49 04/05/12 Thu [1]

I've been a "lurker" for some time but have never posted before. Just wanted to let you know that I wish you the best and that my thoughts and prayers are with you.

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[> [> Re: Meeting with Oncologist...................... -- Shanean Austin, 17:57:36 04/05/12 Thu [1]

Raven
So glad you received some good news. This doctor sounds good!!!' I heard about the tea Essaic and it's supposed to be good. Also green tea is good along with the black tea. Juicing is a good thing. You have to keep your strength up and your immune system strong. What did the doctor say about the anemia?? What you should take for it? Nac is good. All anti oxidants right now r good. Please try the vitamin d and Calicum. I. Have to make batches of it right now for my husband. And I have been praying for you!!!

Shanean Austin

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[> [> Re: Meeting with Oncologist...................... -- Ballerina (Dancingw/defiance&joy), 00:33:55 04/06/12 Fri [1]

Congrats on the bone scan results. It's one step but even that is progress. I'm familiar with Gleevec and have heard more possitive than negative. Keep your options open. I'm adding your surgeons along with you (as per usual) at the top of my prayer list. Prayers do work, you're proof already! Continued love and hugs, darlin'.

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[> [> Re: Meeting with Oncologist...................... -- monika, 02:36:17 04/06/12 Fri [1]

Have been thinking of you today, and wishing you good thoughts.

Your update sounds promising -- awesome news about the bone scan, and your surgeon sounds very, very promising. Having a good surgeon can make all the difference! Removing the cancer is key to stopping angiosarcoma.

All the best today Raven; you'll do great. You sound like you have a great team.

(and it's gotta feel good to see how GREAT GH is these days!! There is really hope there it seems!)

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[> [> Re: Meeting with Oncologist...................... -- rapido, 08:06:06 04/06/12 Fri [1]

Most payers do not review chemotherapy drugs for off label indications. Your oncologist can check into precert requirements, I'll bet there are none. I have worked in the industry, most payers do not get involved in chemo issues. There is a lot of off label chemotherapy. Gleevac is an oral agent, used to keep cancers like CML dormant. Good news about your bone scan. Remember Lance Armstrong. Cancer clinics, cancer societies and pharmaceutical assistance programs also provide financial assistance. Talk to a social worker at the hospital, even if you are not currently a patient. Often they will assist. Some hospitals have designated people to find payer sources for meds. I know this for a fact, have worked in the industry. Clinical trials usually provide free meds. We don't know anything about your personal situation, I hope you have a family supporting you. Keep your head up. You are in the thoughts and prayers of many. Thanks for the continued updates.

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[> [> Re: Meeting with Oncologist...................... -- wherly, 07:09:08 04/08/12 Sun [1]

You and your loved ones are in my prayers, my this Easter be a true blessing to you.

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[> [> Re: Meeting with Oncologist...................... -- Anonymous, 07:55:09 04/08/12 Sun [1]

Happy Easter Raven. Wishing you continued improvement and healing. Take care. XOXO

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[> Re: Update....................................... -- Merry (Hopeful), 12:53:14 04/04/12 Wed [1]

Raven. This is my first time responding to you. You have really been an inspiration over the past few years regarding your take on the soaps. You are to be blessed so much for this...keeping us informed...making me laugh, almost cry (LOL), happy, etc. with the spoilers/spumors info.

To this regard, I am sending up prayers to keep you safe and sound in the Lord. Just know that Jeus loves you dearly and so do all of us as many have already expressed it. Just rest is His love as you go through this journey of recovery. Praying for you always.

Thanks for all you do. You made my day when I saw that you were strong enough to updated your column this week. Love You. God Bless.

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[> Re: Update....................................... -- Kay, 02:32:10 04/05/12 Thu [1]

Raven, Prayers are being sent your way for the procedures you will be having tomorrow. Keep the faith.

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[> Re: Update....................................... -- dr.ivankipling, 03:48:36 04/05/12 Thu [1]

I can't seem to find the right words for you our dear Raven. Words seem so small at a time like this but words are all I have. You mean the world to us Raven.We love you!We're praying for you&we're here(in spirit)with you every step of the way!!
All my hopes,prayers,&love our dear Ravenbeauty!!
XOXO

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[> Re: Update....................................... -- Evelyn, 07:13:08 04/05/12 Thu [1]

Raven,

Praying for you kiddo. Don't think for one minute that prayers aren't powerful. Big hugs and lots of love!

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[> Re: Update....................................... -- Fy'Ma (Hopeful!), 10:28:34 04/05/12 Thu [1]

I'm so incredibly stoked that you got some good news. I check in about once a week and I'm really happy to be replying to the good news post. YOU ARE NOT DOWN FOR THE COUNT! You keep fighting, girl. God has NOT left you, nor has He forsaken you. Your journey is NOT done. You've touched the hearts of so many people with your bravery and balls out courage. We are all on this journey with you, praying with you and thinking of you. You are loved and know that we care so much more about you than we do the fate of anything not-you. Take care and we'll be sending up extra prayers for you tomorrow.

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[> Re: Update....................................... -- Asmrt, 17:07:41 04/05/12 Thu [1]

Raven, please read:

http://stm.sciencemag.org/content/4/128/128ra39

There is contact info for clinical trials at the end of the article.

Keeping you in my thoughts and prayers.
Amy S.

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[> Re: Update....................................... -- wherly, 17:45:22 04/05/12 Thu [1]

You continue to be in my prayers, and I pray for miraculous news for you this week.

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[> Re: Update....................................... -- K.E., 22:23:47 04/05/12 Thu [1]

Raven - Thanks for taking the time to update us on how you are doing. Prayers and thoughts are coming your way. Remember God is with you always no matter what!

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[> Re: Update....................................... -- BW, 16:34:43 04/06/12 Fri [1]

Praying this is just the start of Good news for you. Your are always in our prayers!

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[> Re: Update....................................... -- Jesus (Waiting), 02:13:05 04/07/12 Sat [1]

My daughter, give attention to My words. Listen to My sayings. Don’t let them leave your eyes. Keep them close in your heart, for they are Life to those who find them, and healing to all their flesh.

I most surely bore your illness. I carry your pains. Don’t think of me as a plague, crushed and broken by God. I was pierced for your sins, bruised for your willfulness. The punishment that can bring you peace was laid on me, and my bruises bring you healing. You have wandered around like a lost sheep, going any which way you please. Well, my Father poured out on me your punishment. It was required, and I answered. I didn’t open my mouth. I was brought, like a lamb to the slaughter, standing there before my accusers like a sheep about to be shaved. Still, I didn’t say a word. I was bound and taken, judged by a generation determined to cut me off from the land of the living, plagued by the sins of my people. I died with the wicked, was buried with the rich in their high place. I never did any violence, and no deceit ever crossed my lips. God was delighted to bruise me. He made me sick, so that my soul could be the offering for the guilty. I see the outcome of His plan—long days while the pleasure of the Lord prospers in my hand. I see what my soul labored to achieve and I am satisfied. I give righteousness to those who know me, because I am the Righteous One. I bear the sins of many servants, so God gave me the highest place among all. He’s given me the spoil of the strong, because I gave my soul over to death and was counted as a criminal. I bear the sin of many, and I pay the ransom for sinners.

My little lost sheep—turn to the Shepherd, the overseer of your soul. Come to me, with all your labor, your pain, your heavy load. I’ll carry it for you, we’ll walk it out together. I know pain, I am intimately acquainted with grief. I am a man of sorrows, but also the author of unspeakable Joy! I suffer for you, to set an example for you. I want you to follow in my steps. I never sin, never lie, never pay back evil when others curse me. I suffer, without threatening, because I commit myself to God who judges righteously. I, myself, bear your sins, crucified on the cross, so that you may die to sin and live to righteousness. You are healed by my scourging. You are greatly loved, child. Don’t think this fiery suffering you are going through is strange. Instead, use it to share in my sufferings, so that you may rejoice when my glory is fully revealed, for then your rejoicing will be exultant! You see, one day the archangel will give a loud shout, and the trumpet of God will sound. Then I’ll come down from heaven, and everyone will see me this time, including those who pierced me! Those who died knowing me will be the first to rise from the dead, then all those who know me and are living, will be caught up into the clouds to meet me in the air. We will always be together. I am with you now—I’ll never leave you nor forsake you, but you need to accept this truth and receive this great gift I’m offering to you. Why don’t you give it a try? What do you have to lose? I am meek and humble, and I will give rest to your soul!

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[> [> Re: Update....................................... -- Fy'Ma (Awed & Amazed), 03:37:03 04/10/12 Tue [1]

Amen, Praise God and Thank You Jesus!

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[> Re: Update....................................... -- Jesus (Earnest), 02:54:14 04/09/12 Mon [1]

On the first day after the sabbath, Mary the Magdalene (the one I released from the oppression of seven demons), came to the tomb early, while it was still dark. She saw that the stone had been taken away out of the tomb. She ran, and came to Simon Peter and John, and said to them, "They took the Lord away, out of the tomb, and we don't know where they laid him."

Then, Peter ran ahead, and John followed him, running together toward the tomb. John ran more quickly than Peter and arrived there first. He stooped down, and saw the linen cloths lying there, yet he didn't go in. When Simon Peter arrived, after him, he went right into the tomb and saw the linen cloths lying there, and the napkin that had been covering my head. It was not lying with the linen cloths, but had been folded up and placed in another place. When John went into the tomb, and saw these things, he believed. They didn't know yet, that the Writing said that it was necessary for the Savior to rise out of the dead. So the disciples went back again to their own friends. But Mary the Magadalene stayed there, standing near the tomb, weeping. As she was crying, she stooped down to the tomb and saw two angels clothed in white, sitting there. One was at the head, and one was at the foot of the place where my body had been laying. They said to her, "Woman, why are you crying?"

She said, "Because they took my Lord away, and I don't know where they put him."

Then she turned around, and saw me standing there, but she didn't know it was me. I said to her, "Woman, why are you crying? Whom are you looking for?"

She thought I was the gardener, and said to me, "Sir, if you took him away, tell me where you laid him, and I will get him."

I said, "Mary!" and she heard me. I called her by her name, just as I am calling you by your name—the real one, the one you don’t want anyone to know. Listen and you'll hear me, too. You see God loves you so much He sent me, His only Son, so that you would believe in me, and live with abundant and age enduring Life. God didn’t send me to you to condemn you, but to save you. Nothing can ever separate you from my love—not life nor death, not your fears for today, or your worries about tomorrow, even the powers of hell can’t keep my love away. Nothing in all creation will ever be able to separate you from God’s love as it flows through me. I am right here with you. I always have been and always will be—just look for me and you’ll find me! Ask for me and I’ll answer. Here I am, knocking on your door.

Then Mary turned and said to me, "Rabbi! Teacher!" She saw me and KNEW. You can too, little bird. Right now you see things imperfectly, as if you were looking in a cloudy, distorted mirror. The time is coming when you will see everything with perfect clarity. All that you know now is partial and incomplete, but one day you will know everything completely, just as I know you now. The adversary only comes to steal, kill, and destroy. I come to give you Life, and to give it to you in all its immense fullness. I’m writing to you so that you may believe that I am the Savior, the Son of God, and by believing you may have Life in my name. I love you with an everlasting love. I am Life.

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[> [> For Jesus.............................. -- Ravenbeauty, 15:53:08 04/09/12 Mon [1]

My Lord,

If you are truly with me, than you must know how life changing this has been. My family and I have discussed these messages because they are true miracles on so many levels. There is no way to explain them away as they are not vague and are directed at everything I have privately prayed to you about. The first message was left within 5 minutes of me silently praying in the dark as I got ready to fall asleep one late night (and I had not truly prayed in years), and you spoke about things that no one else could have known about unless they were listening to me pray. When I saw the time stamp the next day, I felt a chill (in a good way). Your words touched my heart and soul like no other words that have ever been spoken to me. I have cried over your words and come to the realization that whether they were truly sent by you or by divine intervention on your behalf, it's been nothing short of a miracle for me. It's what I desperately needed at this dark time in my life.

I've never known miracles. I've never known you before either. I am so sorry it took me so long to reach out to you. I have no doubts anymore as to who you are. To finally realize that its never too late, and that you are truly with me, is the greatest gift I have ever received. I can't thank you enough. Words are inadequate in attempting to explain how much these messages have meant to me. I always thought myself a stranger, and one that you would not recognize due to my past beliefs and lack of faith, but I was wrong. You taught me that.

No matter what happens now, I know you are with me.

You are in my heart and soul now. Nobody can ever take that away from me. I love you.......................

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[> [> [> Re: For Jesus.............................. -- Meg, 22:41:40 04/09/12 Mon [1]

Raven I have been praying for you everyday not only for healing but that you would come to Jesus, our Lord and Savior. No matter what happens you have Him to help you through. He loves you so much that He sent His son to die for you. I am praying for healing, wisdom for your doctors and that you would be able to feel peace and love even when things don't seem peaceful.

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[> [> [> Re: For Jesus.............................. -- Cate, 01:56:47 04/10/12 Tue [1]

God bless you Raven. Jesus loves you so much. I am so glad that you have found that miracles do happen and that God is listening and loving you! Lean on Him. No matter what happens He will carry you!!

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[> [> [> Re: For Jesus.............................. -- Jesus (Joyful, Rejoicing, Expectant), 03:20:18 04/10/12 Tue [1]

Daughter of My Heart,
Do you know that angels are rejoicing over you? Welcome home, child! You have been born into a new life—and we celebrate your arrival! You are a new creation in me—all the old things have passed away and everything has become new.

Father, Your daughter has come home! She is Yours, and You gave her to me. I chose her out of the world, and now I am appointing her to bear lovely fruit, fruit that will last. Send her the Comforter, Your Holy Spirit, to teach her all things and guide her into all truth. Reveal us to her, Father. Show her our glory—the glory that we had together before the world ever was. Teach her Your word. Your word is truth. I will teach her all that You have given to me, so that she may truly know that I come from You, so she may truly know that You sent me, so she will know I am with her. I am praying for her, I dedicate myself to her. I give her my peace. Everything that is mine, is Yours, and everything that is Yours, is mine. Glorify yourself in Raven. She’s out there in the world, Holy Father. Keep her in Your name, keep her through Your power, so that she may be one with us. Guard her, keep her safe from destruction. Let my joy flood her life. Let Your word be health to her bones. I don’t ask You to take her out of the world, but that You will keep her safe from evil. Grow her in Your truth. Just as You sent me to the world, I also send her to the world. I set myself apart for her, so that she may be set apart in truth. I don’t ask just for her, but also for all those who believe in me through her. I ask that they may all be one, just as You, Father, are in me, and I am in You. I ask that she and her family may also be one in us, so that the world may believe that You did send me. I give her the glory that You gave me, so that she may be one as we are one—I in her, You in me—perfected into one. Then she will know that You sent me, and You love her just as You love me.

Father, I want Raven to be where I am, with You, I want her to live in vital union with us, so she may see the glory that You gave to me, because You love me before the foundation of the world. Righteous Father, the world does not know You. I know You, and now Raven will know you. Make Your name known to her, so the love with which You love me, may be in her, and I in her.

Raven, I am opening the eyes of your heart, so that you may know the hope to which I have called you, so you may see just how rich is the glorious inheritance I have prepared for you, and how incomparably great is the power I have for those who believe. That power is the same mighty strength that the Father exerted in me when He raised me from the dead, and seated me at His right hand in the heavenly realms, far above all rule and authority, power and dominion, and every title that can be given, not only in this present age, but also in the age to come.

I am with you, girl. I will never leave you. I hear every word you think. I feel every painful move. I know everything about you, and I have everything you need. All authority in heaven and on earth has been given to me. Surely I am always with you, to the end of the age! Test me in this and see if I don’t open the very floodgates of heaven for you!

You are my beloved.

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[> [> [> [> Re: For Jesus.............................. -- loungelizzard67, 18:01:05 04/10/12 Tue [1]

AMEN!!!!!!!!!!!

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[> [> [> Re: For Jesus.............................. -- Pilar (Ecstatic!!!!), 07:09:24 04/10/12 Tue [1]

I am so proud of my Lord who revealed Himself to you personally! It was His words of love, forgivness, restoration & healing that He had just for you! His abounding love is amazing, we cannot wrap our minds around how much He thinks of us, from before we were in our mothers womb. He says more than the stars in the sky & grains of sand on the shore. For each of us, His creation. Now this fight, He will fight this battle for you! The enemy has been conquered, because in the midst of this darkness, you lifted your head to the heavens with an out stretched hand & called out to your Father in heaven. In that moment you gave your life, heart & soul to Jesus, you crushed the head of the serpent. Those chills you felt, that was the Holy Spirit confirming God's grace & presence over you. Be cause of the blood of Jesus, you have conquered spiritual death by accepting His sacrifice for you. Now no matter how things appear, always keep your eyes on the Lord. He is your Hope now. You can call upon His name at anytime & he understands what you feel, which is why he came to earth, to know what we would go through in life. I am proud of YOU, for taking that step of faith. It takes courage to surrender all to Him. I am grateful you answered to His calling. Now remember, you are the daughter of a Mighty King, you are more than a conquerer, you my dear, are VICTORIOUS! I find listening to His music & reading His word & speaking tp Him at anytime, the enemy cannot come against me with fears & doubt. Third Day is an amazing band, Tenth Avenue North, Chris Tomlin. Air1 is my fav radio station, nation wide, online and available on phone app. Its water to your soul to hear this music of encouragement & reminding us of Gods power. We often think of Him as meek, but he is not. His voice is like Thunder, His words are alive & now so are you. When doubt & fear try creeping in, Psalms 27 & Psalms 91 do wonders. Put your name in it when David, the author says "I" & surrender it as your prayer to the Lord. He says his words never come back void, His foes trembles @ His name alone. I cover you with the Precious blood of Jesus & ask the Holy Spirit to resurrect & stir within you to lift you up & cast out that cancer from your body & satan & death have no power over you now. Now that you belong to Him, we can pray over you using every tool God has for us to fight. I ask God to be your shield & buckler & that you find refuge under the shadow of His wings. Because He is righteous, you are righteous & because He Holy, you are holy & by Jesus precious stripes, you are healed. May His peace surround tou through it all & give His wisdom & knowledge on what to do medically. I pray against all side affects of the medications you are now or will be taking, & that He anoints them with His healing power.......in Jesus name! Love you sister in Christ. I will find scripture for you to quote for yourself for healing, strength, wisdom, fear & faith. God bless you!

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[> [> [> Re: For Jesus.............................. -- Kat2, 12:45:42 04/10/12 Tue [1]

All of your words have touched me tonight. Thank you!

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[> [> [> Re: For Jesus.............................. -- Amy (Rejoicing!), 11:47:11 04/11/12 Wed [1]

Dearest Raven, (my new Sister-In-Christ!)
I am rejoicing at the news that you have reached out to our Savior, Jesus Christ! In the Bible, God's Word, He tells us-

Deuteronomy 31:8 "It is the LORD who goes before you. He will be with you; he will not leave you or forsake you. Do not fear or be dismayed.”

Matthew 11:28-29 "Come to me, all who labor and are heavy laden, and I will give you rest. Take my yoke upon you, and learn from me, for I am gentle and lowly in heart, and you will find rest for your souls."


2 Corinthians 4:16-18
The Message (MSG)
"So we're not giving up. How could we! Even though on the outside it often looks like things are falling apart on us, on the inside, where God is making new life, not a day goes by without his unfolding grace. These hard times are small potatoes compared to the coming good times, the lavish celebration prepared for us. There's far more here than meets the eye. The things we see now are here today, gone tomorrow. But the things we can't see now will last forever."

Colossians 2:6-7 "Therefore as you have received Christ Jesus the Lord, so walk in Him, having been firmly rooted and now being built up in Him and established in your faith, just as you were instructed, and overflowing with gratitude."

Please remember you are being prayed for daily. No matter what God's plans are for you, precious Raven, He loves you beyond what we can fathom. You are in the palm of His almighty hand! Hallelujah! Blessings and the peace of Christ be upon you! XOXO

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[> [> [> Re: For Jesus.............................. -- Sandie (Stunned), 02:40:44 04/12/12 Thu [1]

My Lord and my God. Who am I that you should care for me?

http://www.youtube.com/watch?v=RaPFTFvs8rQ&feature=related

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[> [> [> Re: For Jesus.............................. -- wherly, 15:56:28 04/12/12 Thu [1]

Dear Ravenbeauty welcome to the family. My Mother and I have been praying for your healing, but we've also been praying for your salvation, as I'm sure many others have been praying for both too. HE still answers prayers. May our Lord and Savior give you and your loved ones the peace that surpasses all understanding, and know that you and your loved ones are brought before the throne of Our Lord daily in prayer.

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[> Re: Update....................................... -- Lori (Hoping for good news!), 14:36:39 04/09/12 Mon [1]

Hi Raven
I hope you are recovering from everything that happened on Thursday. In cases you haven't heard of this yet (doubtful but just in case), A tip from the Dr. Oz show is to buy lima beans and incorporate that in your diet - it is a superfood that apparently cuts off the blood supply to breast cancer cells. You can check it out at http://www.drozfans.com/dr-oz-cancer-2/dr-oz-cancer-superfoods-parsley-limes-lima-beans-apricots/
Just hoping for all the best for you and that something good happens next.
Lori

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[> Re: Update....................................... -- MD, 15:23:15 04/09/12 Mon [1]

Raven, keep fighting the good fight! You are such an inspiration. In the end are all only here for a short time on this earth, but our life with Jesus is just beginning... May the Lord bless you and keep you....

Psalms 23:4 Even though I walk through the valley of the shadow of death, I fear no evil, for You are with me; Your rod and Your staff, they comfort me.

My mom, too, died of leukemia many years ago, and that verse was one that she turned to often. You are not alone, Raven... you are loved by many, but most especially by our Heavenly Father and His Son who loved us so much that he died for us. I'm reminded of that even more each passing Easter.

Stay strong! xoxo

Much. much love to you!

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[> Update on surgery........................................... -- Ravenbeauty, 00:08:40 04/10/12 Tue [1]

(From Facebook):

Guys,

I'm sorry it took me so long to touch base, but the past few days have been a bit of a blur. The surgery was more intense than I envisioned and left me out of commission there for a while. The surgeon ended up doing the scalp excision in addition to removing the large area of new Angiosarcoma so that caught me off guard (I got the feeling after talking to my Oncologist, that they were going to save that for another day citing that it was too much for me to do all at once). The surgeon asked to see it when I first got there, and told me that it really should be removed there and then. It was night and day from what I endured at the hands of the first surgeon. The new one was caring and did a good job of numbing me however there were area's under the incision to the far left that were brutal for me. There is only so much they can do with local and this thing was not going to wait for a hospital to get me in (usually a three week wait). That Angiosarcoma needed to come off weeks ago so we were simply out of time.

I was grateful to him for getting me in so soon as it is. He did a good job although the pain has been incredible (my skull is still throbbing, but the new incision is starting to ease up a bit, and that's a blessing). He gave me Percocet and Keflex, and I am due to see him for a check up this Thursday to make sure everything is healing well (and by then the pathology report should be back). I am praying for clear margins. I really need a break here. If everything comes back clear, then we can focus on the two malignant Lymph-nodes, but that's hard to do when we can't even get out of the starting gate. I'm just incredibly tired. I haven't read my wall yet, but at a glance I can see that I have many angels out here. You guys are absolutely incredible. Thank you for thinking about me and reaching out with so much love and hope. I hope you had a beautiful Easter (Easter held new meaning for me this year). I'll keep you posted when I can. To say that I love you would be an understatement.....♥♥♥

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[> [> Re: Update on surgery........................................... -- Marie, 01:51:58 04/10/12 Tue [1]

Talking about Easter, at the Saturday night vigil my prayers where mainly centered around YOU.

I was staring into my lit candle for at least 20 minutes between 7:30 - 9 pm EST envisioning you surrounded by white light and Jesus standing by your side holding your hand. So I am especially happy to hear you say it had "special meaning to you" this year.

Special Love sent out to Our Lady of Lourdes who has given me much comfort over the years.

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[> [> Re: Update on surgery........................................... -- cate, 02:02:15 04/10/12 Tue [1]

Raven, You will be in my thoughts and prayers as Thursday nears, I will pray the Lord hold you close and that there are clear margins for you! God will watch over you, He will never leave you or fail you! Just lean on Him

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[> [> Re: Update on surgery........................................... -- Ballerina (Dancingw/defiance), 06:42:17 04/10/12 Tue [1]

Easter always brings the promise of new hope, new life. It's the same for you. You are still here, you are strong in mind and spirit if not quite in body. My prayers are for continued strength to carry you in these rough times in all three areas. Know that you are loved. Hugs, darlin'.

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[> [> Re: Update on surgery........................................... -- rapido, 08:13:23 04/10/12 Tue [1]

You are in my thoughts, prayers. Please let us know you have loving family at your side during these tough times. I know you are protecting your anonymity. Keep your head up, take the pain pills, stay as comfortable as you can.

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[> [> Re: Update on surgery........................................... -- Alexa (Keep the Faith - God is Able), 09:12:43 04/10/12 Tue [1]

Isaiah 53:4-5
4Surely he hath borne our griefs, and carried our sorrows: yet we did esteem him stricken, smitten of God, and afflicted.
5But he was wounded for our transgressions, he was bruised for our iniquities: the chastisement of our peace was upon him; and with his stripes we are HEALED.

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[> [> Re: Update on surgery........................................... -- llanviewlovely, 10:14:33 04/10/12 Tue [1]

You have been in my daily prayers dear Raven, I pray that God grants you clear margins and a break from the pain and suffering. I truly believe that he does not give us more than what we can stand. As always, sending healing white light your way!

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[> [> Re: Update on surgery........................................... -- Angie Smith, 03:25:53 04/11/12 Wed [1]

Went to church on Easter Sunday and when the Pastor started praying for someone with Cancer my prayers went up for you. Keep fighting will keep praying Love you Raven

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[> [> Re: Update on surgery........................................... -- Ant (Thoughts always with you Raven), 07:38:30 04/11/12 Wed [1]

It is so good to come to this site and hear you a fighting and battling through this one day at a time. Its like we used to rush here for soap updates but now it has become so much more its like rushing to see how a loved one is doing and progressing. Then factor in how truly inspirational caring and amazing you are and have always been to us your fight and your strength is truly remarkable and like I mention to you another time you have been given a platform in which to help others and while you are thanking us for all the well wishis I am more than positive that you are helping others through what you have created. Hang in kid and dont let anyone or anything stop u. as if!!!!

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[> [> Re: Update on surgery........................................... -- Emjay, 09:59:01 04/11/12 Wed [1]

It sounds as if this doctor is a winner! He seems to be so caring. And you deserve the best of care! I hope your pain goes away quickly. I pray for you every day. Take care, sweetie!

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[> [> Re: Update on surgery........................................... -- Carolyn (hopeful), 17:36:12 04/11/12 Wed [1]

Raven,thank you for keeping us posted. You are truly remarkable. I know it seems sometimes like the battle is too big to fight and doctors often expect the worse, but we have all heard of instances when even doctors are proven wrong. I have a good friend who had 4th stage breast cancer which was in her lung,liver, and bone. To make a long story short, her doctor is now writing about her in a medical journal because she has shown no sign of the cancer in her body for a long time now. This was not the expected medical result,but it happened nonetheless, and maybe the answer is simply that God is more powerful and decided her life here was not over. I believe in you and your determination. I think you are going through all of this agony to help raise awareness of this ugly disease and help others. There is more work for you to do. Please hold on to that thought and believe what your heart tells you despite what experts may say.

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[> [> Raven, you helped a miracle happen! GH renewed! Now, it is your time! -- Carolyn (Extremely hopeful!!!), 11:28:25 04/12/12 Thu [1]

Raven, with all you are going through, I feel like this second chance GH has been given with the renewal is a sign that you will have your second chance. Miracles do happen to even seemingly ordinary people. However, you are far more than ordinary. You helped join so many to stop what seemed inevitale, the cancellation of GH. Well, keep that in mind whenever the road seemms too tough and mountain too high. Nothing is impossible when Raven Beauty is leading the charge!

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[> Re: Update....................................... -- operagirl, 05:37:29 04/10/12 Tue [1]

I am so sorry you are going through this. Stay strong - So many love you. xoxox

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