VoyForums
[ Show ]
Support VoyForums
[ Shrink ]
VoyForums Announcement: Programming and providing support for this service has been a labor of love since 1997. We are one of the few services online who values our users' privacy, and have never sold your information. We have even fought hard to defend your privacy in legal cases; however, we've done it with almost no financial support -- paying out of pocket to continue providing the service. Due to the issues imposed on us by advertisers, we also stopped hosting most ads on the forums many years ago. We hope you appreciate our efforts.

Show your support by donating any amount. (Note: We are still technically a for-profit company, so your contribution is not tax-deductible.) PayPal Acct: Feedback:

Donate to VoyForums (PayPal):

[ Login ] [ Contact Forum Admin ] [ Main index ] [ Post a new message ] [ Search | Check update time | Archives: 1, 2, [3], 4, 5, 6, 7, 8, 9, 10 ]

[ Next Thread | Previous Thread | Next Message | Previous Message ]

Date Posted: 16:19:56 05/14/13 Tue
Author: Ravenbeauty
Subject: For Good Will Talking, Along With My Kind, Loving Fans & Friends Not On Facebook.
In reply to: GoodWillTalking 's message, "Raven Update 5/13/13" on 12:51:23 05/14/13 Tue

Hey Guys,



As you can see, things have been a bit dark here lately. I don't get out here very often anymore, but wanted you to know that I read your every note (it may take days to a couple of weeks sometimes to stop by, but I truly do). You have given me so many smiles and moments of hope with your lovely notes, prayers, and your many suggestions.

Thank you so much for being there and lifting me up when I fall. Sometimes it's hard to stay focused and positive due to what all of this has done to me, but your girl is not dead yet. She's not turning in the towel, although there have been days when I fee like I am battling a monster that cannot be defeated. Having the cancer grow back after all this chemo makes me sick to my stomach, but I feel my beloved Mother's spirit beside me, and it was a fierce one until Leukemia took her beautiful smiles away. I'm not giving up. I didn't come all this way to let it go now.

Tomorrow is my second dose of Gleevec (every other day for now). Scared of the many side effects, but knowing that this is truly the last hope I have. If I can manage to stay alive another year, I know that this could impact others with Angiosarcoma who have no hope. Please let me do at least this before I go, my beloved father in heaven. Novartis will have to take notice of my case even more so if I prove this. They could then make it available to others with my rare cancer who are now off label.

God granted me a miracle in my getting this drug, which we could have never hoped to afford or qualify for, so I bless Novartis as well for their incredible generosity. I'm the guinea pig for now with this Leukemia drug, but I hope one day when I look down from a better place, I will see it being prescribed for others who will still be fighting to stay alive and battle this incredibly invasive, aggressive, cancer.

If you have this rare cancer or know anyone else who has it, beg your oncologist for a C-Kit (a simple test) done with the drug Gleevec. Tell them about my highly positive stain with Angiosarcoma and this particular drug. It shouldn't be such a shock when you stop to think about it. Leukemia is cancer of the blood. Angiosarcoma is cancer of the blood vessels (dangerous cousins).

A big hug to all of you who have left me messages of love and hope for me. Thank you so much "Good Will Talking" for taking the time to voluntarily post my updates from my official Facebook. Very kind of you. God bless you all now and always......XOXOXO....

[ Next Thread | Previous Thread | Next Message | Previous Message ]

Replies:

[> [> Re: For Good Will Talking, Along With My Kind, Loving Fans & Friends Not On Facebook. -- GoodWillTalking (Hopeful), 02:10:53 05/15/13 Wed [1]

You're so very welcome, Ravenbeauty! I'll be praying for good results during your Glevac treatments and I am happy to update your Voy friends, until such time as you are well enough to carry on. Keep up your positive attitude, whenever possible and know that we are all thinking of you and praying for your recovery. Much love and good thoughts are going out to you!


[ Edit | View ]

[> [> Re: For Good Will Talking, Along With My Kind, Loving Fans & Friends Not On Facebook. -- Anonymous, 05:33:28 05/15/13 Wed [1]

I'll always be by your side every step of the way. Love you Raven.


[ Edit | View ]

[> [> Re: For Good Will Talking, Along With My Kind, Loving Fans & Friends Not On Facebook. -- Hannah ((((healing light & love)))), 06:42:01 05/15/13 Wed [1]

Dearest Ravenbeauty,

Surrounding you with healing light, love, & hope!
A setback is a setback - not a failure.

Your new treatment may bring a miracle your way!

Love you!


[ Edit | View ]

[> [> Re: For Good Will Talking, Along With My Kind, Loving Fans & Friends Not On Facebook. -- Peaceful (Peaceful), 12:19:56 05/15/13 Wed [1]

Many good thoughts are being held for you, stay strong and positive.


[ Edit | View ]

[> [> [> Re: For Good Will Talking, Along With My Kind, Loving Fans & Friends Not On Facebook. -- Rapids, 07:10:53 05/16/13 Thu [1]

Raven your courage and strength are inspirational. Gleevac is a good drug, stay hopeful.


[ Edit | View ]

[> [> Re: For Good Will Talking, Along With My Kind, Loving Fans & Friends Not On Facebook. -- Blaire (Hopeful), 02:17:00 05/16/13 Thu [1]

Hi Raven and Goodwill:


Raven,
I have been reading your soap blogs for years, now. I have been sending you prayers since I read about your illness.

Last October, my friend Catherine discovered a lump in her breast. She had a mastectomy, and is now, doing fine. As everyone must make a personal choice in the route of treatment they take in this situation, my friend decided to go the natural route, opting to speak to a naturopath and staying away from chemo. Last night, I learned that she had been taking iodine as a form of treatment. The topic came up, because I had been looking for treatment for hypothyroidism. I also note that If you decide to supplement with iodine, you should take these co-supplements in order to avoid detox symptoms, though some just take 50mg Iodorol and are fine:

- - ½ tsp Natural Celtic Salt, Himalayan Pink Salt, Redmonds Salt or Hawaiin black salt
- - - If the Sea Salt is pure white, it is unacceptable (minerals have been stripped out )
- - 200mcg selenium (L-selenomethionine preferred)
- - 400 mg Magnesium - Glycinate preferred
- - 2,000mg Vitamin C - Ester-C preferred - do not take with iodine
- - ATP Cofactors caplet contains both 100mg B2 & 500mg B3 non-flushing in the correct ratio. Take 1/2 caplet with iodine up to 25mg, then one caplet for each 50 mg iodine,
- - - Cost Per Day for required supplements = 75 cents/day, 12.5mg iodoral = 25 cents/day
- - - All prices from Amazon.com ( Free shipping > $25 )
* Complete Details at http://tinyurl.com/iodine-references


I am also noting that I am choosing to take Iosol drops, due to its being more easily assimilated.


I am sending this information, b/c I have a feeling that this may help you in your case. The book about iodine and the reason why most Americans are deficient in it, as well as its significant links to breast cancer, is called "The Iodine Crisis" by Lynne Farrow--breast cancer survivor and advocate. In the book she states why iodine is not used as it had been for the past 15,000 years before the 1970s for treatment of illnesses such as breast cancer, thyroid function, and even syphillis! Lynne also describes her interactions with big-med doctors during her period with breast cancer. Interestingly enough, Farrow is a journalist, like you (I see you in this way).

There there is also a book by Dr. David Brownstien, "Iodine: Why You Need It, Why You Can't Live Without It." You see, the theory that Ms. Farrow supports is that breast cancer is caused by rampant deficiency in iodine, a necessary nutrient for bodily function, and bromine- poisioning--bromine is quite ubiquitous and can be found in mattresses (flame retardants), furniture, and even as a replacement of chlorine. You see, bromine is the antidote to iodine, which would be why most people are iodine deficient despite its being in seafood, seaweed, sea salt, and eggs.

Baby doll, I hope that helps you in any way--I mean, maybe, you've heard of iodine treatment.

God Bless, and I love you!

--B.


[ Edit | View ]


[ Contact Forum Admin ]

Forum timezone: GMT+8
VF Version: 3.00b, ConfDB:
Before posting please read our privacy policy.
VoyForums(tm) is a Free Service from Voyager Info-Systems.
Copyright © 1998-2019 Voyager Info-Systems. All Rights Reserved.