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Subject: Multiple system atrophy


Author:
Kathy
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Date Posted: 09:57:41 07/13/08 Sun

My sister died aged 54 on May 4th 2008. Her condition was multiple system atrophy and she was in hospital for 3 months before she died. She simply shut down slowly and we were not aware of her exact condition until 4 days before she died. Our relationship was unusual in that she was my only sister and was 10 years younger than I am. So we didn't share a childhood together, but when I was small she was a mother figure to me and I suffered huge separation anxiety when she went away to uni and then moved to the States. She did come back to the UK but then we always seemed to be at different stages in our lives at different times. I can't believe she is dead. I saw her body but my constant question is "where are you"? I feel angry towards her sons because thay don't appear to be grieving at all. At the moment I cry most days because of some trigger that sets me off. I have just read "sibling grief" -the book- and am taking the opportunity to post. Thanks for reading. Kathy.

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[> Subject: Re: Multiple system atrophy


Author:
No name
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Date Posted: 10:00:18 07/13/08 Sun

OOPs Kathy again. Made a mistake...my sister Cecilia was 10 years older than me (not younger)!!

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[> Subject: Re: Multiple system atrophy


Author:
No name
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Date Posted: 21:41:54 07/21/08 Mon

Dear Kathy,
Thanks for posting about your sister. May 4th is not long ago, so your grief is still fresh. It will take time. I understand what you mean about her sons not grieving, but there is no doubt that males and females have their own unique ways to grieve. Those who are not psychologically or emotionally strong enough to grieve will have to deal with it later in life. I think this must be harder for you because you never got your relationship with her in the place you wanted it to be and now it seems like it is too late. I once heard someone say that death ends a life, but not a relationship, and I believe that to be true.

Mary

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[> Subject: Re: Multiple system atrophy


Author:
No name
[Edit]

Date Posted: 06:54:49 09/09/08 Tue


Hi Kathy

I think before you loose someone, if there are gaps in your relationship you still think that time will eventually sort it out, especially if you are living abroad. Work commitments and children tend to limit visiting possiblities. Unfortunately a sudden bereavement knocks those assumptions on the head and its an extra load to deal with ... on top of the loss of a dear one.

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[> Subject: Re: Multiple system atrophy


Author:
Donna Edwards (empathy)
[Edit]

Date Posted: 16:35:28 11/22/08 Sat

Hello Kathy, When reading your message, I was immediately understanding of your loss. My only sibling, an older brother, passed away Sept. 11, 2008. He had leukemia and was in the hospital for a stem cell transplant that ultimately failed. The leukemia transformed in to an aggressive form of Lymphoma. I was a caretaker for three months and saw my dearest brother deteriorate although was told that he would still pull through. That was one week prior to his passing. I cannot accept losing him as Steve was my hero and the one who loved me the most in this world. My heart goes out to you. With sincere condolescence, donna

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