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Date Posted: 13:33:35 02/10/02 Sun
Author: HERBERT O DRISCOLL
Subject: INCLUSION BODY MYOPATHY

I HAVE INCLUSION BODY MYOPATHY. I READ YOUR ARTICLE ON THE
INTERET. I AM 59 YEAR OLD MALE AND I HAVE THREE SISTERS
WHICH TWO HAVE SOME FORM OF THIS. MY OTHER SISTER DOES NOT
HAVE ANY SIGNS.I HAD A BIOPSY DONE A SO DID ONE OF MY SISTERS THE OTHER ONE WE ARE TRYING TO TALK IN TO GOING SHE
IS VERY AFRAID OF DOCTORS THE DOCTOR WE GO TO WANTS US TO
GET BLOOD SAMPLES FOR DNA WE ARE IN THE PROCESS OF DOING
THAT NOW I WEAR BRACES I BELIEVE THEY ARE CALLED ALS THEY
GO UP A FAR AS THE CALF I FIND THEM HELPFULL. THEY IMPROVE
MY WALKING. IT IS ALMOST IMPOSSIBLE FOR ME TO UP STAIRS
I DO SRATCHING AND A LOT BICYCLE RIDING.THE DOCTOR I GO TO
IS WITH COLUMBIA PRESBYTERIAN HIS NAME IS DR CLIFTON GOOCH
HE SAID THERE IS NO KNOWN MEDICATION. IF YOU KNOW OF ANYTHING THAT WOULD BE USEFUL OR OF ANYTHING I CAN DO TO HELP IN THE RESEARCH OF THIS PLEASE CONTACT ME MY HOME PHONE
IS 718 2048969 THANK YOU FOR ANY HELP YOU CAN GIVE ME
I HOPE I HEAR FROM YOU THANK HERB ODRISCOLL

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