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Date Posted: 21:29:26 08/30/99 Mon
Author: janeo
Subject: central core myopathy

I have a four year old daughter who has been diagnosed with central core myopathy, after a muscle biopsy showed her muscle tissue was white rather than pink. We have been through the bi-lateral open reduction of the hip, etc etc, what I am searching for is more info on the latter years, what we are to expect, scoliosis etc. I need more precise information as I can't seem to find anyone in aus that has it. thanks.

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