Re: First contact -- Hereditary Inclusion Body Myopathy (IBM2) Forum

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Date Posted: 11:24:05 02/22/02 Fri
Author: John Womeldorf
Subject: Re: First contact
In reply to: Daniel Darvish, MD 's message, "Re: contact" on 22:10:18 09/28/00 Thu

>Dear Doctor, I've just discovered this web site. I'm a 62-year-old male of European heritage who has had increasing weakness in my quadriceps for perhaps ten years, particularly noticible in climbing and descending stairs. I first visited a nuerologist in 1993,in Washington, DC, my home, and no specific diagnosis was made then or four years later other than muscular myopathy. In Feb. 1999 I was examined by Dr. Andrea Corse at Johns Hopkins in near-by Baltimore. A muscle biopsy later proved non-specific, only mildly abnormal. In April 2001 I took an ischemic lactate blood test at Hopkins, but the results were about normal. I was told I don't have Charcot-Marie-Tooth hereditary motor syndrome, or Heriditary Motor Sensory Neuropathy, or Spinal Muscular Atrophy. I have applied to NIMH (?) for a clinical trial which will study muscular myopathies which are puzzling or unnamed. I hope to hear back by mid-March.
Can you add anything to my understanding, based only on what I've related above?
Sincerely, John Womeldorf

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