Re: Inclusion Body Myositis???? -- Hereditary Inclusion Body Myopathy (IBM2) Forum

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Date Posted: 20:03:00 05/12/00 Fri
Author: Bobak K. Darvish, MD
Subject: Re: Inclusion Body Myositis????
In reply to: Karen 's message, "Inclusion Body Myositis????" on 18:54:08 04/18/00 Tue

Dear Karen,
HIBM looks very much like Inclusion Body Myositis on muscle biopsy, with the exception that there is not very much inflammatory changes with HIBM. The distinction CAN be made clinically and by history of disease course, pattern of distribution and weakness, age of onset, etc...
In other words, if you would like to contact us (and please do), by reviewing your case and if necessary arranging to meet for a physical exam, we can determine the likelihood of your having HIBM. Please don't hesitate to call or
e-mail one of us. You can e-mail myself or Dr. Daniel Darvish through our highlighted names on this message board.
You may also contact ARM organization at: (800) 276-2000, that will put you through to us. Thanks again.

Best Wishes,
Bobak K. Darvish, MD
Rehabilitation Medicine
ARM Organization

> I just saw my Neurologist for the first time since my
> biopsy. Looking at my results there was an indication
> of some myopathic degeneration. She also mentioned
> Inclusion Body Myositis but didn't think so because of
> my age? I had wandered around for weeks thinking that
> everything came up normal. All they would tell me over
> the phone was no diagnostic abnormalities so it wasn't
> until today that I actually got to see the
> pathologists report. What exactly does a HIBM
> diagnosis sound like on a muscle biopsy report?
> It all seemed very vauge to me.

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