hate it -- Steroid Warning Network

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Date Posted: 23:18:43 01/11/09 Sun
Author: big Momma J
Subject: hate it

Hey Ivy sorry you are having a hard time. I love you my lil steroid sis. Talk to you on My Space. I know what you mean I feel different I am heart tired. so freaking heart tired. I feel like all this weaning is and dehydration is burning my heart out. I go in rehab at 40mg get to where I can walk slightly and they send me home to wean which I do then they jack me up on the steroids again for breathing. I go back in rehab again in sept I walk a little bit they send me home after 2 weeks and am told to wean again now I am, on 27 from 40 and now my heart is freaking tired. it hurts it skips I am weak I get chills I can only walk a couple of feet and I am constantly feeling like passing out. now I am having problems thinking. I am tired of being sick and I am tired of being a cow and I am tired of being scared. I am, so freaking sick of taking meds injected and oral to stop me from throwing blood clots and the diabetes and the other million problems caused by the steroids I am tired of being told I am high risk or stupid people that don't realize you can't get a gastric bypass on steroids. I am scared I am gonna have a heart attack or a blood clot or a stroke. at this point I can live in the freakin power chair as long as I can function doing things like shopping, cooking, visiting my family, taking my pups around the neighborhood, and doing physical therapy. I would love to just sit in my hot tub. I have become a prisoner of prednisone and my body. I don't know what to do this time, I tell the docs I feel different and I am seeing new docs but the heart docs just arent listening. This time I am going numb and getting really short of breath. this sucks I am only 41. my kid graduates this year and she wants me to take her on a cruise. I just want to function. I don't expect perfection. AND BEING SICK IS TOO DARN EXPENSIVE NOW WE ARE LOSING OUR HOUSE BECAUSE OF IT. THIS IS SO MISERABLY SAD. I WISH I COULD SUE THE MAN THAT INVENTED PREDNISONE. MOM

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Replies:

Re: hate it -- Leslie (Hopeful), 22:19:29 01/21/09 Wed