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Date Posted: 15:59:14 02/24/08 Sun
Author: Judy K (OH BOY!)
Subject: Re: Thank you Judy!/Dercum's Disease
In reply to: Lori 's message, "Thank you Judy!/Durcum's Disease" on 21:02:30 01/14/08 Mon

I am a member on 2 Dercum Forums. There are several of us who have developed Dercum's from PREDNISONE or other steroids! I tell you, Lori...it makes me SICK to know you have this. I am on heavy duty pain meds, have to go to a pain clinic and virtually can't do much of anything anymore. I have been in a terrible flair since Christmas that just won't let up!

EVERYONE...if you start feeling painful lumps...

Please come and join us on the Dercum's forums, Lori. The first one, you have to be invited, which I am doing right now. I will contact Jackie, the forum owner and let her know to accept you. THe other, is public and both are Yahoo Forums.

<a rel=nofollow target=_blank href="http://health.groups.yahoo.com/group/dercumsdiseasefor_women/messages">http://health.groups.yahoo.com/group/dercumsdiseasefor_women/messages</a>

<a rel=nofollow target=_blank href="http://health.groups.yahoo.com/group/Dercums_Disease/messages">http://health.groups.yahoo.com/group/Dercums_Disease/messages</a>

and also:

<a rel=nofollow target=_blank href="http://www.careplace.com/group/">http://www.careplace.com/group/</a>

I mostly post on the womens forum.

Judy



>Howdy Judy and Everyone!
>
>Thank you Judy for listing the fatty lumps, etc., in
>your recent post. I've been having these, and because
>of what you wrote, I researched Durcam's Disease. I
>felt certain that I had it, because I have a large
>amount of the symptoms. I went to my Rheumatologist
>today, and he said that I do have Dercum's Disease.
>Because I told him all of the symptoms that I've lived
>with for the past 4 years years, that I had thought
>were part of my weight/Cushing's, he told me that I
>have had this for the past 4 years. In the past 3
>months, my lumps have spread a whole lot, and have
>intensified.
>
>Please, If any of you have painful lumps, please
>research Durcam's Disease. It's a rare disease, but
>some people that have Cushing's, develop Durcam's
>Disease.
>
>Thank you Judy!
>
>Love and Hugs,
>Lori

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  • Re: Thank you Judy!/Durcum's Disease -- Judy K, 07:52:02 02/25/08 Mon
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