| Subject: Help me please. |
Author:
Tom from Ottawa.
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Date Posted: 03:20:22 10/16/05 Sun
Hi, this is my first time posting on this board. I guess I should introduce myself. My name is Tom, and I'm from Ottawa, Ontario. I just recently turned 20 years old. For a little more than three years I've been fighting an undiagnosed illness. I have done my part in going to the doctors and specialists and now it's been more than three years and I still am not getting any help. Approximately three years ago I was rushed into the hospital and I was promptly diagnosed with idiopathic thrombocytopenic purpura (low platelets). I was kept in the hospital for about 4 days, I was unable to walk for more than a few minutes and was suffering from pain, fevers and unexplainable fatigue and confusion. I actually thought I was going to die. So here I am a little more than three years later and they have still not found out what is causing my symptoms. The platelet disorder does not make people sick. It is, for the most part, a disease that lacks any real debilitating symptoms, except for the chance of internal bleeding.
For the whole duration of this illness I have been experiencing some symptoms. These symptoms cannot be explained by any doctor I have seen. The symptoms have lasted for three years and have not went away and have only become more intense. The symptoms include fevers, aches and pains, confusion, exhaustion and there are other symptoms but they are less important to me because they dont have such a profound effect on my life. The fevers occur every day and are usually low to medium grade. The aches and pains are painful enough to stop me from walking for more than 5-10 minutes. If I do any type of exercise I tend to feel severe pain for up to 5 days after I do the exercise. It's usually a nagging radiating pain which occurs in all parts of my body. I don't know how to explain it better than that. I also suffer from extreme exhaustion at all times of the day. No matter how long I sleep I never feel like I have rested. This exhaustion is so bad that at time I get very confused and have trouble understanding what people are saying and I often forget many things. I constantly feel like I am in a fog. The symptoms have gotten so bad that I cannot function and live a normal life. I am constantly sore and feverish and I am unable to do simple things like going to school or working. All I want is to just get back to my normal life. I've tried and tried to just ignore my health problems but it doesn't work. They are just too severe for me to handle. I have been going to the doctors frequently to figure out what is wrong and all the tests they do come back negative. A couple of the doctors finally just used asked me if I was depressed or upset about something, and I know they just want to help me, but I was insulted. I can tell the difference between physical illness and mental illness. I think doctors accuse people of being depressed quite often. I know a woman who was feeling ill for over a year and her doctor had told her she was just depressed and it turned out there was something major wrong with her pancreas and she almost died. Anyways, i'm getting off track. I really just want someone to point me in the direction of a doctor who can help me. If they can't figure out exactly whats wrong with me, they should at least help me treat my fevers, pain and if it's possible, the fatigue. It's been such a long time and I'm only 20, I was supposed to go to university and accomplish my goals and eventually do something great with my life. It seems that my dreams have been put on hold while these doctors try to figure out whats wrong. I just can't help but think they aren't really trying to help me. I don't know where to turn or what to do. All I know is that I need someone to figure out a way to treat me and get my health problems under control so I can get back to living a "normal" life.
If anyone can point me in the right direction to a doctor that can help me I would be very grateful. I can't imagine being sick like this for 3 more years. If you are a doctor here is some more info with regards to my health. I am 6'4, 288lbs, I have idiopathic thrombocytopenic purpura, and have been diagnosed with Fibromyalgia by a Rheumatologist, but she has not offered to help me. I don't think her diagnoses was very sound. She didn't seem too sure because my symptoms aren't consistant with that disorder. My mother does suffer from Fibromyalgia though so I could have it as well as another illness.
I live in Ottawa, Ontario. Please contact me by email if you know of any doctors who would be willing to help me. I realize my illness is a mystery and that I may never know what is wrong, but hopefully I will get these symptoms under control. Thanks for taking time to read this, I know doctors are overloaded in Canada but who knows maybe a doctor will see this and lend a helping hand.
Sincerely, Thomas.
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