VoyForums
[ Show ]
Support VoyForums
[ Shrink ]
VoyForums Announcement: Programming and providing support for this service has been a labor of love since 1997. We are one of the few services online who values our users' privacy, and have never sold your information. We have even fought hard to defend your privacy in legal cases; however, we've done it with almost no financial support -- paying out of pocket to continue providing the service. Due to the issues imposed on us by advertisers, we also stopped hosting most ads on the forums many years ago. We hope you appreciate our efforts.

Show your support by donating any amount. (Note: We are still technically a for-profit company, so your contribution is not tax-deductible.) PayPal Acct: Feedback:

Donate to VoyForums (PayPal):

[ Login ] [ Contact Forum Admin ] [ Main index ] [ Post a new message ] [ Search | Check update time | Archives: 1, [2], 3, 4 ]

[ Next Thread | Previous Thread | Next Message | Previous Message ]

Date Posted: 20:00:59 10/10/17 Tue
Author: jessica
Author Host/IP: d1-210-0-143-118-on-nets.com / 118.143.0.210
Subject: ¥»´ä©t¨à¯g±wªÌ¤Î®aÄݤ䴩¹ÎÅé

¥»´ä©t¨à¯g±wªÌ¤Î®aÄݤ䴩¹ÎÅé¡G
®L¬ù®Ñ©t¨à¯g°òª÷·|
http://www.obg.cuhk.edu.hk/fetal-medicine/fetal-medicine_services/iem/

http://www.jhforphandisease.org/


¨àµ£¦M­«¯f°òª÷
http://paed.hku.hk/ccdf/

­»´äÂH¦hÁÞ¯gº[¨u¦³¿ò¶Ç¯f¤¬§U¤p²Õ
http://www.hk-mps.com/tc/index.html


Chinese University Hong Kong neonatal screening (Metabolic Diseases)
https://www.fetalmedicine.hk/en/iem.asp

¥~°ê¤Î°Ï°ì©t¨à¯g²Õ´

¿D¬w¡G

SMILE Foundation
http://www.smilefoundation.com.au/

¥[®³¤j¡G

The Canadian Society for Mucopolysaccharide & Related Diseases Inc.
http://www.mpssociety.ca/page/home.aspx

¼Ú·ù¡G

BLACKWAN Foundation (¬ã¨s©t¨à¯gªº·ç¤h°òª÷·|)
http://www.blackswanfoundation.ch/

European Organization for Rare Diseases (EURORDIS)
http://www.eurordis.org/

Orphanet
http://www.orpha.net/consor/cgi-bin/index.php?lng=EN#


µá«ß»«¡G

Philippine Society for Orphan Disorders
http://www.psod.org.ph/ver2/

¥xÆW¡G

°]¹Îªk¤H¨u¦³¯e¯f°òª÷·|(TFRD)
http://www.tfrd.org.tw/

­^°ê¡G

Genetic Alliance UK
http://www.geneticalliance.org.uk/index.html

Rare Disease UK
http://www.raredisease.org.uk/

¬ü°ê¡G

C.A.I.D. Foundation (Stop Childhood Autoinflammatory Diseases)
http://www.stopcaidnow.org/

Children's R.A.R.E Disease Network
http://www.crdnetwork.org/

EveryLife Foundation for Rare Diseases
http://www.everylifefoundation.org/TopNav/ContactUs.aspx

Hide & Seek Foundation for Lysosomal Disease Research
http://www.hideandseek.org/

National Organization for Rare Disorders (NORD)
http://www.rarediseases.org/

Office of Rare Diseases Research, National Institutes of Health
http://rarediseases.info.nih.gov/

United Mitochondrial Disease Foundation
http://www.umdf.org/site/c.otJVJ7MMIqE/b.5472191/k.BDB0/Home.htm


¨ä¥L³sµ²


Genetic Alliance
http://www.geneticalliance.org/

Rare Disease Day
http://www.rarediseaseday.org/

Rare Disease Search Engine
http://raredisease.org/

Orphanet
http://www.orpha.net/consor/cgi-bin/index.php?lng=EN

Sanford - Burnham Medical Research Institute
http://www.sanfordburnham.org/default.aspx

[ Next Thread | Previous Thread | Next Message | Previous Message ]
[ Contact Forum Admin ]

Forum timezone: GMT-8
VF Version: 3.00b, ConfDB:
Before posting please read our privacy policy.
VoyForums(tm) is a Free Service from Voyager Info-Systems.
Copyright © 1998-2019 Voyager Info-Systems. All Rights Reserved.