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Subject: Re: About to start Novantrone


Author:
debbie (happy, debbie)
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Date Posted: 23:15:40 06/26/07 Tue
In reply to: Lisa 's message, "About to start Novantrone" on 19:21:19 03/29/06 Wed

>Hi everyone!
>A little about myself- I am turning "the big 40" this
>year and am married with four children. My first
>symptom was Opticneuritis way back when I was 21; not
>another one until I was 1 month pregnant with our
>second child who is now 81/2. At this point I was
>told to terminate the pregnancy - I obviously didn't
>listen and was diagnosed with an MRI after Emma was
>born. I was told to take interferon and tried it for
>6 months, then stopped. I didn't want to focus on the
>MS! My theory is, "nobody knows what their tomorrows
>are and life must go on", and so it did and still
>does. I had no other symptoms until 2 years ago - my
>left leg started to get "lazy" and it still is. I use
>a walking stick and after seeing a new neurologist
>(that's a bit of a tounge twister), I have decided to
>start Novantrone which is still in the trial stage
>here in Australia. I'm a little scared, however it's
>something I've been wanting to do for the last 18
>months. I do "peer support" for the MS Society here
>in Melbourne and have been for almost 6 years. I love
>talking to newly diagnosed patients who are scared of
>having children or getting married, because they think
>having children will make their MS worse. If I can
>make a difference to one person then I am happy. It's
>about not giving up and living in the truest sense of
>the word.
>Bye for now,
>Lisa
you have the same attitude i have. the way i figure it, what have we got to lose? i start in a couple months

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