we could use some positive energy -- Forestgreen's Wolfden

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Date Posted: 15:27:30 06/12/02 Wed
Author: darktides
Subject:

we could use some positive energy

we're not too good at asking for things for ourselves, but right now we're feeling pretty scared and worried. we have got some appts coming up on the summer solstice, and the critical mass of them is making us pretty darn nervous.

first, a meeting with two of our supervisors at school. one of them we are really quite skittish around. at an earlier comprehensive exam he was really very put-downish and discouraging and frankly it's not something we need right now.

in the afternoon, we go back to see our rheumatologist. he seemed fairly convinced that we have Sjogren's syndrome, which seemed a good diagnosis in its systemic form. although it's scary it would be good to get a diagnosis of what has been going wrong with our immune system ++ over the last ten years. however we can't help but feel anxious too. our bloodwork is sooo inconsistent, and sometimes things that are there seem to vanish, and we're wondering whether this will happen again and he will just wave me/us off as a hypochrondriac. we know that the fatigue and arthritis and everything is real, but doctors seem to hold such a power over us, and we're not looking forward to it. we know we don't WANT to be sick, but if you are sick, and you know that your health is NOT what it used to be, the last thing you need is someone to tell you to snap out of it and that the pain is all in your head :(.

oh well, it doesn't sound like much but we are pretty scared, so any positive thoughts you could send would be appreciated.

love darktides

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Replies:

((((((((((((((((Darktides)))))))))))))))) keeping you always in my prayers and thoughts (NT) -- BL, 15:02:18 06/13/02 Thu