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Subject: Precious little girl needs help! Author: Dayna [ Next Thread | Previous Thread | Next Message | Previous Message ] Date Posted: 16:02:47 09/16/04 Thu I have an adorable, 3 year old cousin in Arizona who is dieing from an extremely rare disease called Sanfilippo Syndrome. Lauren will lose all mobility and brain function within the next few years and will die by the time she is a teenager. She is already losing her hearing and her eyesight and her joints are already starting to harden. There is a procedure that only Duke University is doing that can save her life by stopping the progression, but she must have it done now. They will not do the procedure if we wait more than another month or so because she will be too far deteriorated. The problem is that this procedure costs $600,000 and the insurance company has refused to pay even a small portion of it. We have less than a month to raise $600,000 because Duke University will not even begin the necessary testing until they have the money. The news stations in Arizona have been very helpful and are doing what they can to help raise the funds. I also would like to do all that I can to help by having a yard sale/car wash/bake sale on Saturday, September 25 starting at 8:00 am. Destiny RV Park in Corinth, TX (right off of I35) has agreed to allow us to have the sale and carwash on their grounds. I am asking for donations of unwanted items/baked goods that can be sold at the sale to benefit Lauren. Please cut and paste the link below from a website called Caringbridge into your address bar to learn more about this disease and to read Lauren's story. If anyone has any items they can donate, please email me at dayna@cdjennings.com or call me, Dayna Jennings, at 940-365-3432 and I will go pick them up. There is also a benefit fund set up for Lauren Sutton Reed at Bank of America that anyone can contribute to. Thank you in advance for any contribution that you may be able to give. I am praying that, with help from others, we can save Lauren’s life. <a rel=nofollow target=_blank href="http://www.caringbridge.org/az/lauren">http://www.caringbridge.org/az/lauren</a> [ Next Thread | Previous Thread | Next Message | Previous Message ]