Re: I need your help -- POST POLIO DISCUSSION FORUM

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Date Posted: 19:36:18 01/09/03 Thu
Author: Bonnie Farnham
Subject: Re: I need your help
In reply to: Jim 's message, "I need your help" on 05:09:55 03/30/00 Thu

>I had polio when I was 3 years old. comepletely recovered. I am now 51 years old and about 6 months ago I started to loose all motor activity. I started falling about every 2 weeks and had to walk with a cane and then to a walker. My nervous system shut down on me 11 years ago in which I lost speech and hearing functions. those funtions were restored 2 years ago.From what data I've gathered I think I have pps. I would like to know your findings. Also, how do drs. differenate their diagnosis between pps and als. thank-you I too am a victim of polio and the resulting PPS
>syndrom. I am currently writing a book on the subject
>to hopefully raise awareness to the world that this
>problem does exist and more doctors have to take this
>illness seriously.
>
>I would like to be able to cite some actual
>experiences from other sufferers citing how PPS has
>adversely affected their lives. All submissions will
>be held in the strictest of confidence. If you would
>prefer you can send them annoymously. You can either
>post it here within the forum or you can send it to
>the manager of this site and he will get it to me.
>
>Thank you and good health

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