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Date Posted: 09:20:28 08/02/00 Wed
Author: Melodie
Subject: Ordering my ticket out of limboland; new doc suspects MS

Here's what happened at my doc appointment on Monday,

FINALLY!!!
In my good fortune, this doc was not able to reach the refering doc so he had no preconceived notions! He did not really even seem to know who the other doc was (go figure); I was under the impression that they were too close and this doc would ONLY do what the other had told him to, a very dangerous situation.

He sat down with me took my history, asked questions, did an exam and sceduled tests!

Tommorow I will have an MRI, NCV, and lab work; finally neurologist who WANTS to take an active role in helping me! He did not seem condesending or to interpret my symptoms as psycological. He scheduled a follow-up! (You have to understand, no neuro has done that since the first one! The last were like, well you can come back if you want to. HE thinks I need to come back! What a feeling! A doc who is going to stay with me until we get to the bottom of it! )

He is willing to go the extra mile; he talks of more tests like a muscle biopsy (which I know from my mother is very painful for a long time), but I'm willing to do anything that will shed light on what is wrong. He also wants me to see an endocrinologist (which I suggested and was shot down by a doc a yr ago) for the facial hair, acne, and cystic ovaries.

It could be a bunch of little (and potentially damaging) illnesses that together look like MS (the MRI should help).

I cannot thank all of you and God enough! I really felt comfortable with this doc and was able to relax (NEVER happened with another doc on the first visit). I could feel the strength and encouragement all of you had; I did not feel alone or self-conscious.

I went to pizza hut buffet afterwards then to Wards and (my mother and I) went a little crazy with their sale items! Anyway, it was fun and one of the best days I've had in a long time!

It is such a great comfort to know I have a doctor who wants to help me and believes in me! I don't have to worry about finding another doctor or that his viewpoint is swayed. He wants to know the truth as much as me and agreed that the old tests needed to be redone (Lymes, CBC, B12, I could go on! He realizes that these things can change rapidly)

I'm at peace finally! I still don't know what's wrong (YET!! ), but I finally feel like I will know soon or at least I have a doc who will keep looking until it is found. What a relief!!


Here's what happened Tuesday

Well, today the neuro did the EMG and NCV and foud perineal neuropathy; he got absolutely no response from that nerve in my lower leg. } Then I gave him a more complete list of my symptoms (which I had forgotten to do yesterday.) He knew then that there was definite neurological damage; he speaks of a possible spinal tap, muscle and nerve biopsy in my future (after the tests are back)

(I think he also noted my absent babinski in the exam yesterday; he tested it several times)

Here's the big news; when I went to get my MRI, the diagnosis for the reason for it said MS; so I am close, he hasn't said it to my face yet though.

I also noted the technichain looking upset during it and then calling another person in there, then 2 more came later, so i think it showed something.

I'm even more sure that it's MS now and I feel the diagnosis is coming soon, maybe even on my next appointment on the 14. I feel sort-of sad and uncertain of my future at times (much to my surprise) but most of the time, I am glad this part of my life is almost over. I also have the urge to shove my EMG/NCV, MRI, etc in the faces of the 2 neuros and the pain disease doc (who said he was "99.9% sure no MS" with a smile on his face! after 2 yrs, no MS is not a good thing to hear; I know that's what's wrong!)

Anyway, I'm so close now; I'm trying to prepare myself for hearing it.

So you know as much as me,
Melodie

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