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Date Posted: 22:27:32 08/27/00 Sun
Author: Melodie
Subject: trouble walking; can anyone relate?

This began during the movies:
It would have been a great movie (space cowboys) but during it I noticed I was having trouble paying attention. Then my legs reverted to their fun tingling (had stopped over vacation).
Then the movie ended and when I TRIED to get up, I found I had to hold onto the seatbacks to get out( to my shock; I had been fine when I went in); I was too weak and dizzy to walk. I held onto the wall and when I got away from that area, my mother had to support me out of the theater (another fun thing). My whole body felt like my legs had, that it was an extreme effort just to move.

I had trouble thinking; it took me a while to just to complete a thought, even longer to say it. (I thought I might be having stroke)It felt surreal, like a dream; I kept expecting to wake up.

I kept getting more afraid; I was afraid that this might advance to paralysis but moreover to death. I cried for hours and refused, for that same length of time, to go to bed. I was afraid I was going to die or at least collapse; I tried to stay around the van so (when) I collapsed they would be able to get me in the van.

The tingling has stuck around (even though I'm on 600mg of neurontin), but thankfully trouble moving left me.

tingling is constant since the movies

Problems started again on Thurs evening; . thurs the dizziness hit me again, legs almost too weak to walk, fall over most times I get up, fatigue, legs fall out from under me, extreme pain in legs when standing/moving and after, esp in ankles

Been worse since then fall almost everytime I up, dizziness causing some of it, weakness other, spasms worse; pain horrible, hard to sleep; arms even hurt (probably from swinging them to create momentum to walk), getting harder to walk, can't lift legs, have to use wall, stick or swinging arms at night to walk. I keep falling to the left and still feel like I'm going to collapse esp outside, but even in the house when I get out of bed!

I'm scared, tired and frustrated; I would like the doctor to know, but the office isn't very good about relaying messages. I also don't want to give him the impression that I'm going to be a naging patient who calls between every appointment! I'm not sure what to do; my next appointment is in 3 weeks.

I hope my body can wait, but it is scary doing it; I don't want to wake and not be able to walk! It amazes me that I could worsen that much in the space of time of a movie. That was bad enough, but to have it come back again scares me b/c it is getting worse.

I'm afraid it will just keep up until I'm unable to walk, but what could the doc do anyway? As you can surely see this is a rather long story to try to relay over the phone too; I could his his fax number though (an in town doc has the number of it on some of my records).

I just don' know what to do; I'm shocked I'm still having this problem but it did occur to me that maybe I ought to suggest a spinal tap now. It might help diagnose me and would give me an excuse to call!

I've written a book by now, so I'll try to leave. It's hard when you're scared; it feels safe here.

Melodie

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