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Date Posted: 12:45:39 05/29/00 Mon
Author: serya
Subject: Re: Did the forum crash again?? I wanted to post, but can't get on!
In reply to: Melodie 's message, "Did the forum crash again?? I wanted to post, but can't get on!" on 23:55:38 05/28/00 Sun

Sorry your fun day was costly, but it sounds like it was nice. Feeling bad sure can take the zing out of great plans. Don't give up Melodie! Maybe by next year you will have a diagnosis, but also you may be on some medication that will allow you to enjoy outings like the RiverFest. Let's not assume things are only going to get worse. Let's just hope no matter what, we will have enough of a diagnosis to receive meds that will allow us to enjoy such activities in the future.

It sounds as if you look forward to this outing annually so don't plan to give this up so fast. Look forward to attending next year and being comfortable doing so. Just yesterday I had a similiar situation. My husband mentioned extending our previous planned activity. I had to remind him there was no way I could endure what he proposed. It required much more walking and I knew I couldn't endure.


I too get more pronounced numbness and tingling when subject to remaining in the same position or holding on to something like you mentioned. It's the pits!

Get rested and don't apologize for complaining. We all understand your frustrations because they are ours too.

Serya
I kind of depressed; I pushed my body too hard and it
> fought back! I was going to post at the MS board, but
> couldn't get on!! Withdrawl (from the forum)is nasty!
>
> I went to RiverFest today (a festival in Little Rock,
> AR; there are crafts and just about anything else you
> would want to buy, bands, dancers and other
> entertainers, a huge fish tank-form game and fish
> commision-, and a fireworks finalle! It was over a
> mile long this year! I don't even want to know how
> much walking I did!)
>
> WARNING! COMPLAINING AHEAD!!
> Anyway, my body is angry at me and I'm depressed b/c
> I'm not sure if I can ever go back again. My legs
> started to ache badly (as they do when they think I've
> walked too long). By the end of the day I could barely
> lift my legs and felt like I could calopse. I ached
> all during the fire works and my right lower side
> started to hurt (spasm? or ovaries?).We rode a short
> bus ride there and took it back; it was not nearly as
> nice then! (the trip in had about 20 people on the bus
> and the trip back had at least 40; we were crapmed to
> say the least. I was with 4 other people and did not
> want to be separated so I went on that bus. I ended up
> standing right in front of the steps where you get on,
> getting pushed on curves. It took every bit of
> strength I had to hang on; when it was over, my hands
> were numb and tingly and aching! My shoulder hurts
> badly (due to dislocated clavilce; it was too much on
> it clinging on that bus ride)
>
> I spasmed all the way home (1 hr.) and went I sat down
> at home my legs tingled all the way from the hip down
> as well as my whole arms for about ten minutes; my
> feet still have not stopped, 2 hrs later! HAS THIS
> HAPPENED TO ANYONE ELSE??
>
> I love going to this!! I've gone most every year, but
> it was so hard and that bus ride was just plain scary!
> (we don't have to ride it again though.) Maybe by next
> year I will be diagnosed and better! I just hate
> having to check with my body before I can make plans!
>
> Did you answer my question?? (tingling would also like
> to know about numbness due to holding hand aroung
> those bars for about ten min-on bus-) Thankyou and I'm
> sorry to complain; I just get so frustrated!
> Melodie

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