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Date Posted: 17:47:08 05/31/00 Wed
Author: Buzz
Subject: Survey results so far (I hope this works!)

KEY:
1: Anna-Marie
2: Ruth
3: Serya
4: Sharron (aka Sanpiper)
5: Bridget
6: Michelle Nelson
7: Kami (diagnosed w/MS 5-10-2000)
8: Joan
9: Sam
A: Heidi
B: Chloe
C: Salty
D: Bobbie (diagnosed w/MS)
E: Bev
F: Tara
G: Buzz
H: Sheila



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Visual disturbances: 1 2 3 4 5 6 7 8 9 A B C D E F G H
blurring of vision - - - X X - - X - - X - - - X X X
darkening/graying of vision (haziness, cloud) X - X - - - - - - - - X - - X X -
difficulty with color - - - X - - - - - - - - - X X - -
double vision (diplopia) - - - - - X - X - - - X - - X - -
optic neuritis - - - - X - - X - - - - - - - X -
involuntary rapid eye movement - X - - - - - - - - - - X - - X -
eye pain - - - X - - - - - - - - X - - - X
eye pain with eyeball movement - - X - - X - X X - - - X X X X X
light sensitivity X X - X - X - X X - X - X X X X X
hard to see black print on a white page - - - - X - - - - - - - - - X X -
retained image - - - - - - - - - - - - - - X - -

--------------------------------------------------------------------------------

Balance & co-ordination problems: 1 2 3 4 5 6 7 8 9 A B C D E F G H
loss of balance X X X X X X X X - X X X X - X X -
tremor - X X X - - X X - - - X X - X X -
hands shake - X - - - - X - - - - - - - X X X
unstable walking (ataxia) because of balance - X X X - - X - - - - X X - X - -
vertigo and dizziness - X X X X X X - - - - X X - - - X
clumsiness of a limb - X X X X X - X X X X X X - X X -
lack of co-ordination - X X X X X X X - X X X X - X X -
dropping things - - - X - X - - - - - - - - X X -
foot drop - - - X - - - - - - - X - - X - -
spacial miscalculating (walking into doorways) - X X X - X X - X - - X - - X X X
freezing up- not knowing which foot to lift - - - X - - - - - - - - - - X - -

--------------------------------------------------------------------------------
Weakness: 1 2 3 4 5 6 7 8 9 A B C D E F G H
limbs feel like lead - X X X - X X X X X X X X X X X -
poor grip strength - - X X - X - X - X - X X - X X -
weak legs X X X X - X X X X X X X X X X X X
legs give out- buckle - X X - - - - - - - - - - - - X -
weak arms - X - X - X - - - - - - - - X X X
knees feel like they are going out of joint - X - - - X - - - - - - - - X X X

--------------------------------------------------------------------------------

Spasticity: 1 2 3 4 5 6 7 8 9 A B C D E F G H
stiff muscles (tightness) X X X X X - X X X - X X X X X X X
stiff joints X X X X - - - X X - X X X X - X X
pulled muscles - X X X - - - X X - - X X X - X X
spasms X X X X - X - X X - X X - X X X -
wiggling of facial muscles (myokymia) X - X - - - - X X - - - X - X X -
twitching muscles - X - X - - - X X - - X - - X X X
lack of fluidity in movements - X X - X X - - - - X X - - X X -
walking difficulties due to stiffness - X X X - X - - - - X X - X X X X
jumpiness - X X X - X - X X - X X - X X X X
restless legs at night - X - - - - X - - - - X - X - X X
big "jolt/twitch" response to sound/contact - X - - - - - - - - - X - - X X X

--------------------------------------------------------------------------------

Altered sensation: 1 2 3 4 5 6 7 8 9 A B C D E F G H
tingling X X X X X X - X X - X X X X X X X
buzzing X X X X X X - X X - X X X - X X X
pins & needles X X X X X X X X X - X X X X X X X
itching X X X X X - X - X - - - X X X X -
numbness X X X X - X X X - - X X X X X X -
zinging X - X X - X X X - - X X X X X X X
Lhermite's sign - - - - X - - - - - - - - - X X -
"loose threads" tickling sensation - X - X - X - - - - - X - - X X -
bugs crawling feeling - X - X - - - - - - - - - - X X -
bugs biting feeling - X - X - - - - - - - - - - X - -
sensations of water running down skin - - - X - - - - - - - - - - X - -
cold things feel wet - - - - - - - - X - - - - - X - -
burning sensations - X - - - - - - X - - X - - X - -
cold feels like burning - X - - - - - - - - - X - - X - -
banding - - - - - - - - X - - - - - X - -
shock like sensations - - - - X - X - - - - X - - X X X
feel like walking on lumps - - - X - - - - - - - - - - - X -
pounding heart - X - - - - - - - - - - - - X X -
heart "forgets" to beat - - X - - - - - - - - - - - - X -
funny feeling in ears like wind "buffeting" - - - - - - - - - - - X - - - X -
don't know where legs/hands are - - - - - - - - X - - - - - X - X

--------------------------------------------------------------------------------

Pain: 1 2 3 4 5 6 7 8 9 A B C D E F G H
chest pain (hug) - X - X X - - X - - - X X X X X -
"falling feeling"/"heart attack" sensation X X X X ? - - X X - - - X X - X -
joint pain X X X X X - - X X - - X X X X X X
hip pain X X
facial pain - - X X - - - X - - - - - X - X -
headaches X X X X - - X X X - - - X X X X X
back pain - X - X - - X - - - - X X X X X X
painful skin sensitive to touch - - - X - - - - - - - X - - X - -
painfully cold extremities - X - X - - X - - - - X - - - X X

--------------------------------------------------------------------------------

Abnormal speech: 1 2 3 4 5 6 7 8 9 A B C D E F G H
slowing of speech - - X - - - - - - X - X X - X X -
slurring of words - - X X X - X - X X - X X - X X -
stuttering - - - - - - X - X - - - - - X X -
changes in rhythm of speech (long pauses) - - X - - - - - - X - X X - X X -
Difficulty in swallowing (dysphagia) - X - X - - - X - - - - X - X - X
forget whats being said in middle of a sentence X X X X X X X X X - X X X X X X X
difficulty finding words X X X X X X X X X X X X X X X X X
mixing words together (garbled words) - X - X X - - - - - - X - - X X -
thinking one word but saying another - X - X - X - - - - - X - - X X X
calling things by the wrong name - - - - - - - - X - - - - - - - X

--------------------------------------------------------------------------------

Fatigue X X X X X X X X X X - X X X X X X

--------------------------------------------------------------------------------

Bladder problems 1 2 3 4 5 6 7 8 9 A B C D E F G H urgency - X X X - - - - - - - X - X - X X
frequency X X X X - - - X X - - X - X - X X
incomplete emptying (spastic bladder) - X X - - X - X X - - X X - X - -
emptying at inappropriate times (incontinence) - X X X - X - - - - - X - - - - -
hesitancy - - - - - X - X - - - - X - X - -
frequent UTIs - X - - - - - X - - X - - - - - -

--------------------------------------------------------------------------------
Bowel problems 1 2 3 4 5 6 7 8 9 A B C D E F G H
constipation - - - - X X - X - - X - X - X - X
bouts of diarrhea - X - - X X X - - - - X - - X - -
loss of bowel control - X X - X - - - - - - - - - X - -

--------------------------------------------------------------------------------

Sensitivity to heat & temperature: 1 2 3 4 5 6 7 8 9 A B C D E F G H
heat causes a worsening of sx - X X X X - - X X - - X X - X X X
cold causes a worsening of sx - X - - - - - - - - - X - - X - X
wacky body temperature control X X X X - - X - X - X X X - X X -
night sweats - X - X - - - - - - - - - X X X X
cold extremities - X - X - X X - - - - X - - - X X

--------------------------------------------------------------------------------
Sensitivity to sound X X - X - X - - - - X - X X X X X
Ringing in ears - - - - - - - - X - - - - - - - -
Ear feels plugged (but it's not) - - - - - - - - - - - - - - - X -

--------------------------------------------------------------------------------

Cognitive & emotional disturbances: 1 2 3 4 5 6 7 8 9 A B C D E F G H
problems with short term memory - X X X X - X - - X X X X X X X X
can't remember what you just said - X - - - - X - - - - X - - X - -
concentration - X X X X X - - X X X X X X X X X
lack of focus, easily distracted - X X X - X - X X - X X X X X X X
difficulty doing more than one thing at a time - X X X - X - X X - X - X X X X X
judgement or reasoning - - X - - X - - - - X - X - X X -
"too much incoming" multiple stimuli overwhelms - X X X - - - X X - X X X X - X -
"OK. What was I doing" is most common phrase - X - - - - - - - - - X - - X X -
talking out loud to remember what you're doing - - - - - - - - - - - X - - X X -
emotional incontinence (crying @ drop of hat) - - X - - X - X - - - X - - X X -
depression - - X X X X X X - X - X - - X - X
irritability - - X X X X - X X X X X X X X X X
anger - - - X - X - - - - - X - - X X X
panic attacks - X - - - X - - - - - - - - X - -
anxiety - - - - X - - - - - - - - - - - X
feel as if your personality has changed - X - - - X - - - - - X - - - X X

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