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Date Posted: 17:44:44 03/04/02 Mon
Author: Kara Gagliardi
Subject: Re: question 4
In reply to: Beth McKinney 's message, "question 4" on 17:18:13 03/04/02 Mon

>I think if I was in Sherry's position I would react
>the same way in which she did. Knowing that you have
>a disease that could lead to your death is a very
>scary thought. A possible more threatening thought is
>the fact that no one else in your family, at this
>point in time, is going through the same ordeal you
>are. This definitely could lead to the feelings of
>being alone and lost. You have no one to share this
>experience with and no one who truly understands what
>you and your body are going through. If I had to
>counsel Sherry through this ordeal I would have to
>tell her to do as much research as she possibly can on
>the subject. This way she will realize and understand
>the doctor's orders and know what is happening inside
>her body. She would always have to live her life to
>the fullest and not take any second for granted. She
>must continue to lead a normal life and know that it
>is not her sister's fault that she does not have the
>same disorder.
In response to Beth's response to questoin four, I totally agree with her. Sherry is at a hard time in her life. She is the onyl one with this genetic disease and she has to cope with it. She feels alone, and i don't balme her. I think that if i was in that same situation, I would not know what to do. To think that she may think that she has no one to talk to breaks my heart. She has no one in her family that understands what she is going through because as far as they all know, no one has this marker gene. She probably feels isolated adn remoted becasue she feels that she has no one to talk to. I would just try to listen to any thing she said and counsel her as much as i can. I would tell her to lok at the positive side that her family memebers weren't affected and that she could lean on them when she did not feel strong. I would also tell her that I was there for her if she needed anything and that she could always talk to me. I would also suggest she look into some type of support groups for people with genetic disorders and suggest that she contact one of those groups.

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  • Re: question 4 -- Bridget Scott, 15:33:16 03/05/02 Tue
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