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Subject: Re: Cystic Hygroma's Author: monica [ Next Thread | Previous Thread | Next Message | Previous Message ] Date Posted: 11:41:57 03/03/04 Wed In reply to: Sarah 's message, "Re: Cystic Hygroma's" on 10:46:24 02/23/04 Mon Hi Sarah -- wow, we have two Sarah's with a TS diagnosis! Well, your dr is just nutty to say that it's *impossible* for your baby to live w/ TS and cystic hygroma'and hydrops. Granted, the odds are not in your favor, but it's foolish to say impossible. More likely is that dr doesn't want to manage this pregnancy -- maybe, to give him the benefit of the doubt, he just wants you to avoid the possible pain of losing your baby. WHo knows . . . what's important is what you want. What kind of info/resources do you think would be of help to you? Are you in info overload and just looking for support, someone to have hope with you? We can do that for you. Just tell us what you need! The yahoo group (below) has not been active recently, but if you email the groupowner/moderater, I'm sure she will set you up with other moms -- perhaps some of them have been exactly in your shoes! http://health.groups.yahoo.com/group/ts-pregnancy/ Okay, Sarah, we are here for you, just help us to know what your needs are! Sincerely, Monica [ Next Thread | Previous Thread | Next Message | Previous Message ]

Replies:

[> [> [> [> Subject: Re: Cystic Hygroma's Author: Sarah [ Edit | View ] Date Posted: 15:02:58 03/03/04 Wed Hello, I just thought I would update you guys. We just switched doctors and the new doctor found things on our records that the other doctor kept from us. We found that our baby has no kidneys and therefor will not live long after birth. Especially in addition to all of her other problems. I have ten weeks left, so I have started planning her funeral. Thanks for the support, Sarah [ Post a Reply to This Message ]

[> [> [> [> [> Subject: Re: Cystic Hygroma's Author: Monica [ Edit | View ] Date Posted: 15:22:24 03/03/04 Wed Oh Sarah -- I'm so, so sorry. Do you want to be put in touch with some other moms who lost their baby for the same reason? I know a handful of moms who would be very willing to talk with you (or email with you) and help you process what is happening, and what will happen. Let me know -- you can email me if you like. Hugs and prayers! Sincerely, Monica [ Post a Reply to This Message ]