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Subject: Re: Cystic Hygorma


Author:
maria
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Date Posted: 17:14:03 05/02/04 Sun
In reply to: Lisa 's message, "Cystic Hygorma" on 07:58:21 03/19/03 Wed

Hi, I was told three days ago that my baby has cystic hygroma. I'm in my llth week. And we are confused and I'm scared. This our first pregnancy and we went through alot to get pregnant. It took us 1 year 1/2 and we had to do IUI three times and finaly it worked with IVF. So know we find out that our baby has this. Would anyone know what the chances are of me having another one.

Scared,
Maria

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Replies:
[> Subject: Re: Cystic Hygorma


Author:
Lacy
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Date Posted: 12:27:22 01/13/05 Thu

I had my ultra sound at 18 weeks and found out that my baby had cystic hygroma. I am not sure what to do, my doctor told me that I could abort the baby now, or I could just go into labor, which would happen in the next 4 weeks. I am trying to find good specialist to get second and third opions but cannot find anyone. So if anyone as any ideas or information, please e-mail them to me as soon as possible. Thank you so much

Lacy

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[> [> Subject: Re: Cystic Hygorma


Author:
Monica
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Date Posted: 06:41:17 01/17/05 Mon

Hi Lacy,

I'm really sorry to read about your baby and the cystic hygroma diagnosis. I'm trying to figure out why your dr has given you this 4 week window -- are they saying that your baby's system is failing in some way? Otherwise, that sounds pretty strange. I'm very happy you are getting a second opinion. If you can email me, I can give you the email/contact of a mom who has a 19 yr old with cystic hygroma. They discovered her daughter's hygroma just barely prenatally -- when they did they delivered her right away (but this was late in pregnancy and baby was viable) so they could treat her. She had surgeries to remove the hygroma -- it was apparently quite large and embedded. It was touch and go with her baby early on . . . but she made it! She lives not too far from me and either just started attending college/university or has for a year (I haven't been in touch for over a year so I'm not quite sure what she's up to).

Anyway, apart from giving you some hope that the CH doesn't always have to end in death, I thought maybe the mom might be able to help you find a specialist . . .

Hope to hear from you!

Sincerely, Monica

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